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Posts (147)

3 days ago · Meeting up with others who are having Proton Treatment in Prostate Cancer

Great news on your SBRT treatment! Yes, the Androgen Deprivation shot for me was very bothersome. Sweats, Chills and easily to tire. Good luck going forward.

4 days ago · Meeting up with others who are having Proton Treatment in Prostate Cancer

My wife and I had a very pleasant afternoon when we met up with 2 other men who are undergoing radiation treatment at roughly the same time as me. I met one of the men on this forum and the other was staying at the same place as the first. We exchanged our thought processes in choosing what treatment we picked, any "Buyer's Remorse" after choosing radiation and just talked about life in general. It was a very calming day and I hope to meet up with them again. I start SBRT on Thursday while the other man started his yesterday. Why did I post this? It's because the meeting of men in a similar boat away from Mayo relaxed me and reassured me that my choice was the correct one. This can help you also.

4 days ago · Radiation for Prostate Cancer with Ulcerative Colitis in Prostate Cancer

@sparky54 I see that Colleen mentioned me in a post. I have Barrett's Esophagus, not a lower GI problem like you. Yesterday I had a scoping of my Esophagus done At Mayo Rochester awaiting the results of the biopsy's. Thursday, I start SBRT treatment for my Prostate, that's 5 treatments over the course of 10 days. Good luck to you Sparky

Tue, Sep 1 3:16pm · Mayo Chapel at St. Mary's in Rochester open during COVID-19? in Visiting Mayo Clinic

Thanks for the update! Hope you get called back soon!

Tue, Sep 1 11:04am · Mayo Chapel at St. Mary's in Rochester open during COVID-19? in Visiting Mayo Clinic

Anyone know if the Chapel in St Mary’s hospital is open to the public during Covid. That is my favorite go to place to be close to God. Loved the Peace Garden at St Mary’s also but that’s been closed for a while, although when at Mayo in May, it looked like the construction was pretty much done. Loved that place, hopefully they will rebuild it to its previous glory. Will be at Mayo for a month starting on 9/6.

Mon, Aug 24 6:52pm · Anyone had the 5 treatment proton therapy for prostate cancer? in Prostate Cancer

I'm committed to the SBRT but thanks for all the info.

Mon, Aug 24 4:17pm · Anyone had the 5 treatment proton therapy for prostate cancer? in Prostate Cancer

@semeon May I ask where you have the FLA in 2014? Mayo Rochester is just starting a study on it. Also would you mind sharing your PSA #'s prior to and after each FLA. Finally could you share your Gleeson score. FLA seems to be a good possible option for treating low-risk native prostate cancer. Mine Gleason score was 4+3 intermediate.

Tue, Aug 18 1:36pm · Anyone had the 5 treatment proton therapy for prostate cancer? in Prostate Cancer

@daveywavey We arrive 9/6 and are staying at an inexpensive VRBO. Just found out that Hope Lodge has reopened that gives free lodging to people getting treated for cancer. You might want to give then a call. https://www.cancer.org/treatment/support-programs-and-services/patient-lodging/hope-lodge/rochester-mn/about-our-facility.html