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Aug 13, 2016 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain
I’m not sure what the discussion on fibromyalgia has been I’VE been down for a long time. I have had 8 spinal surgeries and after 20 + years opened my mouth to my rheumatologistt sometimes I hurt all over. I also have 4 immune diseases diagnosed at a two week stay at the best hospital in my state. My doctor worked me over for 30 minutes and sad add fibromyalgia to the list. He said prednisone would be best but to dangerous so he gave me soma which helps a lot. I’ll leave it at that for now. briansr.
This is briansr. Every time I try to send you direct email, post or
reply, view etc I can’t. I get a message on my screen stating ” Your
connection is not private “. I replied to a post you sent out by going to
the top of the post and using the arrows to send this. This message
needs to get to Colleen young please. I need help. briansr
I hate to say this but I don’t remember writing this post in May. My memery is not to good but well, I don’t know. Could someone write and sign my name, or anyone else’s name, and get away with it. The post sounds like me but I sure don’t remember it. Was I even writing at that time?
So glad to be back Ms. Young. Right now still fighting a lot of battl4s on all fronts. Spinal, 3+ months and still going on one of my immune diseases. Low grade fevers to where I’m burnig up, and a bunch or problems with my pain doc getting scare of DEA. All drs will start soon even though nothing has passed at the stse or federal level,.YET. Look out for September and November. At the federal level. States will follow suit. Get back on when up and mobile. Nice hearing from somebody.out there. I feel like I’m fighting alone but I know that is not true. Not enjoying any part of life right now but I have faith. This whole year has just been a major bummer. Talk to you soon. briansr
Yes, I believe I am.If I move my toes it feels like there is mud with rocks mixed in. It’s moving up my feet and ankles, numbness, feet feel cold but there’re nice and warm. Sometimes they are warm but I always have a burning feeling in both feet. I’ve tested myself with a sharp item, (shouldn’t do this), and I have no feeling from the toes up to the beginning of my ankles, both feet. When I walk it feels like I’m walking on rocks, with and without shoes. A lot of leg pain and I used to have Restless legs so bad I would be in the bathtub, super hot water, 6 to 8 times a night. Had a sleep study 15yrz or so ago and they said my legs went crazy. They were all over the place. It took me 20 yrs and a lot of trials but I found a med that works pretty good. I’ve had numerous eeg or emg’s, with the needles, results were not good for legs and arms. The last one the dr said it was caused by my sarcoidosis, I’ve had eight back and neck surgeries which is what I always blamed. He said no. I have 5 immune diseases, inherited from my Mom. Needless to say I’m 60 now and have battled this crap since 1983. I’m tired. I apologize for running my 88mouth, I’m usually on the chronic pain group, but I’ve been down for about 3 months and am just now getting back on. I saw your post and thought we had something in common. Does it sound close to your problem? I don’t know but would like to hear your story. My user name is briansr. Cl9ck on my namm and we can talk privately, or just pozt, I should catch it!! briansr
Thank you for your reply. I know how tough it is tk battle an illness when you have children. When I was first injured I had three boys, the oldsst2, 10, the youngest about four. I tfid to cetudn to work but had to have another spinal surgery in one year. I was offered no job that my sugeon would approve so started college and had to drive approximately 120 miles a day to go. And I was also building a home in the town I still live in, a college town, but still 120 mile daily trip and watching my house go up. Received a BS EE in mid year 1990, but no one would hire me due to my ongoing health issues. So I started selling antiques, but of course the bottom finally fell out of the market. But only thing that got me up in the morning, made me study hard and make good grades, try to buy and sell antiques, was my three boys. I may have hurt like hell, run high fevers, been just not want to move, but I was at every teacher parent conference, plays, musical concerts. My boys helped do things around the house that I couldn’t, like unload and stack wood, some cleaning etc etc. But they heavy into track and basketball, debte clubs. But if you can name me another Father that was blessed to make it to all meetings, all BB games, all track meets, and debates, I’ll show you a very happy and proud Dad! This is the good part of having a screwed up back and whatever was thrown my way. It was great. And now I have a lot of great memories during a rough spot. As for now I’m a cranky old 60yr old with a body of a 90 yr old.LOL. But oh the memories!!! briansr
I’m not clear on everything your going through but try to hang in there because you Will find a solution beginning with a new doctor. I’ve had eight spinal surgeries and have been fighting for 30+ years. A lot of times I have given up but something from inside kept me going. I’m now at that point again after being down for over a month. My dr says I need another surgery in my thoracic regi0n, whice would leave me with very little of my natural spine left. I said no more! I too have just stopped taking certain meds and came out better. But that is dangerous. I’m also dealing with five immune diseases, one which just slammed me down for 2+ weeks. All I could do is ride it out. I want answers much like you do but I’m at the, I give up stage, but I can’t quit yet. I’m 60 and right now could care less if I made it to 61. But here I go rambling again when I’m saying is you’ll find that right dr and get the test you need done and I believe that you will come out on top!! I and I’m sure the many people on this site am going to keep you in my prayers. And prayer does work, I don’t know how but they do. Along with you and our prayers 6hat doctor will show up and get you going in the right direction again. You can do it!!! briansr