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May 26, 2016 · Chronic pain - Let's talk in Chronic Pain

Bob, you were talking about not being able to keep a job because needing to take naps. I have a Pain Pump with Hydromorphone, Fentanyl and Bupivicaine that pumps these Opiiods into my system all day long plus I take up to 4 Hydrocodone 10/325 tablets a day plus 300 mg of Lyrica. I got where I was going to sleep at stop lights, or be driving and all of a sudden realize that I was somewhere I had not intended on going
, just sort of woke up and was there with no memory of going there. My doctor put me on 500 mg of Nuvigil and that hjas solved the problem. Hope this helps you.

May 20, 2016 · Chronic pain - Let's talk in Chronic Pain

@ladyjane85-God bless you. I get to feeling bad and then I see there is always someone worse off than me. I have a Pain Pump implanted and also a Spinal Cord Stimulator implanted and while I am not getting very good results from either, many people do get relief with the stimulator. Nervo has the latest one out and you never even know it is on, unlike the older style where you felt the vibrations in your body and had to turn it way down or off to lay down.

I would suggest you ask your doctor about the stimulator. It is not a bad surgery, you will have the stimulator implanted on one side of your back, under the skin, an incision of about 5 to 6 “ but not deep and one incision over your spine to implant the leads. It will be an incision of about 4”. In a couple of days you will be back to normal except for lifting. I have heard of a lot of people getting real pain relief. I just happen to be one of the ones that it does not help yet (still optimistic) and neither does the pump filled Hydromorphone and Fentanyl.

Good luck!

May 19, 2016 · Chronic pain - Let's talk in Chronic Pain

People not understanding what pain does to you and the hopelesness feeling you have about it is a major frustration. I do try to keep a positive attitude each day because I enjoy staying as active as I can and my mind still has not realized that the body can’t do everything that my mind wants it to. My pain doctor is probably doing everything he knows to do. I have a pain pump with Hydromorphone and Fentanyl pumping the drugs into my body 24 hours a day. I can take a up to 4 Hydrocodone in addition a day. I just had my old Spinal Cord Stimulator replace with the newest on the market. I was told that many people that did not get any relief from the old style would get relief from the new one. I was also old that the average patient would get relief by the time they had gone thru 4 or 5 programs on the stimulator. Well with my luck, I have gone thru approximately 18 programs and still can not tell any difference. Each program has 8 stages before you move to the next ptogram, that is 144 stages that I have gone through and still nothing.

I have a major gripe about my Pain doctor, when I see him, I get as high a 4 to 6 minutes time before with him before he leaves. I know that he is busy and he maybe frustrated at not being able to get me any relief (but I doubt it) but I am the one that brings up new meds or procedures to try. If he thinks I will benefit from it he will agree to try it. Considering trying to find another doctor but since he implanted the Pain Pump and both stimulators it will be difficult to find a doctor who wants to take control of my care.

I have considered going to either the Mayo Clinic or there is supposed to be a Hospital that specializes in Neuropathy. I am ready to try anything. If someone can prove to me that eating cow manure will stop the pain, you had better keep a watch on your cows. I really appreciate this Forum in that I do see different treatments or meds mentioned timt to time.

Apr 25, 2016 · I am being referred to rochester mayo clinic for second opinions in Visiting Mayo Clinic

I am on my 2nd Spinal Cord Stimulator and I also have a Pain Pump that
pumps Hydromorphone, (Hydrocodone & Morphine) and Fentanyl into my body 24
hours per day. I also can take 4 Hydrocodone a day if necessary, I
usually take at least 2 each day. My average Pain level is 5 on a Good
Day and higher on Bad Days. Most people would have had gotten relief by
now but not me.

My 1st Stimulator was the type where you felt the vibrations in your
body, it really never gave me any relief. When my battery needed
replacing after 7 years, they implanted the newer brand, Nervo which has
higher frequency of stimulations that you can not feel, you don’t even know
it is on.

The remote control is set for 3 programs with 8 stages on each program.
You have 24 potential different settings, so there should be one that should
give you relief. When you have gone through these 24 settings, it can be
reprogramed with 3 more programs and 24 more settings. There are hundreds
of potential settings. I was told that the majority of patients will
find a program that gives them relief by the time that have gone thru 4 or 5
programs. Lucky me, I have gone through about 10 programs and 80
settings and still have not found the right one for me.

From what I understand, the Nervo stimulator has had rave reviews by a
number of doctors. It very may work for you. I would definitely try
it before they put a Pain Pump, which will definitely make you a Drug
Addict.

Good Luck and God Bless You!

Apr 21, 2016 · Chronic pain - Let's talk in Chronic Pain

My doctor has prescribed Nuvigil for me. Lately the insurance has been a
problem but it works very well. I would fall asleep at stop lights.
Hope you get some relief.

Apr 13, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I have been thinking of the essential oils since I heard of them on these
post. I have tried about everything known to man but not this. Could
you give me the ingredients and the amounts to use for the cream?

Apr 10, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thanks, according to the Doctors and the Techs, the new Stimulator is
supposed to be working wonders on some people. They told me last week
that most patients will get relief within the first programs, I have just
had my 11th and still nothing. But with this type stimulator there are
supposed to a lot of potential programs so maybe there is one out there for
me. The Doctor did say that they would consider it a success if I got 40%
relief. I would gladly accept that.

Apr 10, 2016 · Chronic pain - Let's talk in Chronic Pain

What type pain do you have. Is it Diabetic peripheral neuropathy pain or
what?