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Posts (37)

May 31, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks, for the info. I think I will try applying now.

May 28, 2018 · Hot water heat in MAC & Bronchiectasis

Thank you so much! Wow! Lots of very important info. I decided I need to be a life time learner on this illness I have bronchiectasis/microbacterium abscesses. I'm on 3 meds a day.

May 28, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I applied for disability because of this illness and I got it. I'd like to know more about getting on Medicare earlier. That would be awesome and help me out with my treatment. Right now I'm so limited to Dr.s and hospitals. It make a lot of stress for me.

May 27, 2018 · Hot water heat in MAC & Bronchiectasis

No, I didn't find the conversation on reinfection. That would be great if you could copy it for me. Thank you so much. Hugs, Tutti (Lisa)

May 22, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I had some very occasional bleeding from the lungs.  It was just a few drops in my throat and stopped almost immediately. But the last time it happened the blood soaked several tissues. Fortunately it stopped quickly. My Dr. said if it happened again and the bleeding didn't stop, I should go to the ER. I would need an interventional radiologist. 

May 6, 2018 · Hot water heat in MAC & Bronchiectasis

Does anyone e know if a home heater with a boiler is a problem for those of us with, NTM?

Mar 10, 2018 · Amikacin side effects in MAC & Bronchiectasis

Go soon to have your hearing checked. I understand hearing loss can happen quickly. Don't want to alarm you but that was what I was told. Let me know how it goes. Prayers for you!