About

Member has chosen to not make this information public.

Posts (319)

Tue, May 7 12:51pm · Initial Visit in Jacksonville- How Long Should I Expect to be There? in Visiting Mayo Clinic

@katieknight When I first went to Mayo Clinic I was told by the GI department to plan on staying a few nights. If they feel you need any testing they will schedule pronto. The GI department was scheduling a colonoscopy .

Usually my Hematology appointments can be all done in one day. Blood, Ct's and meet with the Dr in the afternoon.

It just depends on what you are having done? They also had me fax all my medical records so they could go through in advance. That way thye knew what to schedule.

I wish you the best at Mayo. If you need anything or have more questions pop back online.
Jackie

Tue, May 7 12:43pm · Stomach like a beer belly after colon cancer surgery in Colorectal Cancer

@chicagolinda @colleenyoung Hi ladies sorry for the delayed response. I been moving and still am. Just decided to take a break and catch up on connect.

@chicagolinda My right side feels a bit larger than before too. I seriously think it is cause i babied my stomach too much. I do have that round tummy now. I used to hike the beach but stopped doing that cause of red tide. Ya wonder how of this is age? Plus my stomach muscles are so weak now, from having 3 surgeries in that over the last 14 years. @colleenyoung we just purchased a house with a pool so I will let you know if swimming makes a difference? It is even hard since the surgery to do sit ups like I used too. A combination of age and surgeries plays a number on our bodies.

Being in my mid 50's, it is not as easy to loose weight like I once did. Plus I think we tend to sit more than we did in our 40's. At least I do.. It starts to catch up with you that sluggish metabolism.

Long walks is another good exercise to work the core.. Or using an exercise ball. There are many core exercises on that. Planks may help too…

Linda I am also originally from the suburbs of Chicago..

I wish you the best
Jackie

Mon, Apr 8 8:25pm · Talking Frankly about Living with Advanced Cancer in Cancer

@dc4444 I am a patient at Mayo Clinic in Jacksonville. I have been very impressed with all my treatments there.
They are fast efficient and treat the whole patient not just the disease.
I would get a second opinion from them for sure.
I wish you and your sister the best.
Jackie

Thu, Apr 4 5:54am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

@sograteful Well that is good news. If there was an issue he would of picked it up in the blood work. At least your thyroid is good.
Has the lymph node changed in size? Lymphoma lymph nodes go up and down in size.
I would not worry too much. Wait to hear what your ENT says?
I wish you the Best!
Jackie

Wed, Apr 3 8:03am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

@sograteful I just wanted to check in and see how your Dr's appointment went on 4/1?
Hope it was all good news?
Jackie

Wed, Mar 20 6:56pm · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

@sograteful Swollen glands does not always mean lymphoma. The three major symptoms when it is active is drenching night sweats, weight loss without trying and a fever that will not go away.
In order to find out why my lymph nodes swollen? They have to biopsy the fluid inside of the swollen lymph node. Then they will do a Pet Scan and if the lymph nodes light up on that scan. The biopsy confirms the type of lymphoma. Which is what they did to me.
Then every 3 months for the first year they want blood work and CT Scans. So they can watch what the glads are doing. Mine shrunk with each scan.
Then they move you out to every 6 months. blood work and Ct scans. If it all looks stable. You get moved to 1 yrs. scans and every 6 months blood work.
After 3 years if everything is stable you visit the Hematology Dr. once a year.
I am guessing will go on, till we are 110 years old?
Cause with some lymphomas you can live that long. 🙂

I wish you the best..
Jackie

Wed, Mar 20 5:06pm · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

@dianebrumbach I see you are new here on connect. I would like to welcome you to the community.
If you don't mind me asking, How was your lymphoma found? Did they by any chance, mention which type? There are about 65 different lymphomas.
Many are super slow growing. You could live an entire lifetime and never need a treatment.
@njnana is correct staging is just a number.

Fri, Mar 15 7:39am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

@pammyzammy Welcome to connect and Thank you very much for sharing your story. It brings much hope to those who been diagnosed with NHL. I have been on a watch and wait approach for a little over 3 yrs now.

I just had my followup check up and since it has been over 3 yrs now, I been told that I only need blood work and Ct scans once a yr . I have had perfect blood work the entire time. The lymph nodes near my aorta are enlarged and are considered on the smaller side. I do not have night sweats, weight loss or unexplained fevers. If it wasn't for a CT scan you would never know I have signs of this disease.

I had colon cancer which is how they found the NHL. The cancer marker for colon cancer show no evidence of disease. So they are fairly certain that is was all removed.

The first 3 years after diagnosis is a tell tale sign if these diseases will become troublesome according to my hematology Doctor. So far so good for me too. He feels that my Follicular Lymphoma will not require treatment for years to come. He can't rule out I wont need a treatment at some point. But as of now not to worry having NHL.

I hope both our stories inspire others with NHL.

Again thank you for your post.
Jackie