My husband’s cousin died from this horrific disease. Everyone thought he was using drugs or alcohol with his slurring, behavior etc. It was too late. It progressed rapidly. He got violent at 2 nursing homes and was ‘kicked’ out. He was in his 50’s. There can be a carrier of the gene in the family. No one else has seemed to have this but some of his siblings were tested and their dad was a carrier. Also he has a young adult daughter but she doesn’t want to know if she carries the gene. I am so sorry. I hope you can find a support group. We do have a few around this area. It was an awful way to watch a loved one. But yet so many are….