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Posts (3)

Dec 1, 2016 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi Mikee, nice to meet you here. I am living in Sweden and have had fibromyalgia for 15 years. I was diagnosed with “unknown allergy” and given disability pension. I later moved to Singapore and the climate there was good for me. My disease got better so I started to work again in the IT-industry. Some years ago it got very bad again and I couldn’t continue to work, ended up in hospital with several chronic diseases, a heart attack with following heart problems and sleeping problems. I was also diagnosed with fibromyalgia. My wife and her family was very abusive towards me and as sicker I got as worse it became. Today I know for sure that the traumas I did go though in my marriage has caused both the heart and sleeping problems as well as the fibromyalgia.
I filed for divorce and had to leave Singapore. Back in Sweden doctors don’t care about people any more and all the money goes to refugees. I get some help for my heart problems and sleep problems but no one wants to address the fibromyalgia. The departments at the hospital are fighting about which one should handle it so no one does. I also have the right to get money from insurance for my living and disability pension again but I cannot get in this situation when the doctors don’t want to do anything. I got treatment in Singapore that really helped but it is so hard to get it here so I get worse day by day. I have been in a wheelchair in Singapore and the treatment helped me out of it. Now walk with a walker and will soon be back in the wheelchair if I don’t get treatment soon. It has also been close for me several times but I am keeping on fighting. I don’t think there is anything else to do.

May 4, 2016 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Thank you for your support. It warms my heart that people care. I am 55 years old and I would like to be able to do things for 10 – 15 years more even if I have to sit in a wheelchair. I am quite capable of doing and solving things so I think I will find a way forward. But I struggle a lot with my self-worth as I was raised to take care of my siblings and when I needed help from them they was not able to help me. I know that I have to take better care of myself, eat better and a lot of other things but I feel so guilty when I do things for myself.

I have two small parrots, Lovebirds, and they mean everything to me as they are my children right now. They are very important to my mental health and I take them with me when I move but some people think I am crazy for loving them so much and it is quite costly to get them with me. But the same people wouldn’t question if it was a dog. It makes me feel guilty but at the same time I know that I wouldn’t go without them.

I just came back from a hospital where I have spent the night for a sleep study. I have no idea of the result, all I know is that I was awake until 4 am and still need more sleep.

I struggle a lot with my diseases, some weeks are so bad so everything is pain and the only thing to do is to rest. I have to go and shop myself and for every day out I need at least 2 – 3 days rest. The problem is that the big pain does not come right away; it comes after 20 – 30 minutes and then is too late to do something about it. Worst is when the hip is aching because then it get so hard to walk. The hips are x-rayed and the joints seem to be ok, it is the fibromyalgia in the big leg muscle that is giving me the pain.

Even when I have all this pain I think it is important to focus on something else than my pain. I don’t want to sit and feel sorry about myself all the time. I am educated about child abuse and have worked with it in the past. Then I also voluntarily worked with abuse against men and from men. It is my goal to be able to go around and talk about abuse against men as I have knowledge and experience about it that can be important to share. In Sweden I was doing research about bullying about 20 years ago and when I left there has not been any more research done. And it is much needed. But first I have to find ways to take care of and improve myself.

May 2, 2016 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi, my name is Tommy and I have several chronic diseases. I am not living in the US and am moving from Singapore back to my home country Sweden. I was first sick in 2001 in Sweden and got wrong diagnose and disability pension in 2004. In 2005 I moved to Singapore and the climate made it a lot better so I started working and cancelled my disability pension. But it got worse and I haven’t been able to work for some years and I got help from the health care system here after ending up in the emergency.

It has taken time and the first diagnose was that my knees was worn out and that I had multiple polyarthritis and was put in a wheelchair. I got physiotherapy in warm water and it has helped me a lot. Now I am diagnosed with fibromyalgia, arthritis, chronic sinusitis and chronic pelvic pain syndrome as my prostate and urine bladder gives me problems. On top of that my left lung is collapsing, I have Meckel’s Diverticulum (a pocket on the colon) and when they examined that, colonoscopy, they found the beginning to colon cancer. At this time it was benign but they could not see the whole colon clearly and want it to be done again in Sweden. Like that wasn’t enough I also had a heart attack 26 August last year with following surgery and in the middle of November I was back to hospital with heart problems. My heart was beating to slow and irregular. Tomorrow I will be admitted for a sleep study as I suffer a lot from insomnia.

I also have an abusive marriage and starved so I lost 25 kg and was diagnosed with malnutrition. Thankfully I got help from the social welfare so I could at least eat one meal a day. I am very thankful for the help I have got here in Singapore; they have done a lot for me. After several years of struggle in court I finally got help from legal aid and am getting a divorce from my wife and can return to my home country. I have tried to leave before but my wife has stopped me and now I have to leave because I will lose my PR because of the divorce.

But I have nowhere to go. I am going back to a place I have lived before but because of the refugee situation in Sweden there is no housing available. Even the health care system is trying to make it hard for me to come there. I have a daughter and grandchildren there and my daughter is helping me but fighting with the bureaucrats is horrible. I just have to go there and just hope they will help me otherwise I will end up on the street without health care. The catch 22 is that I can’t stay with my daughter because then they will say I don’t need help. The Swedish system is for refuges not for helping returning citizens. And they misdiagnosed me before. I hope I at least can refill my medications as I am not allowed to take everything with me into the country and I so badly need a wheelchair. Hope I can get help with it.

Sorry for writing so long but I am in a lot of pain and the situation is desperate so I need all the input I can get. Thank you.