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Posts (4)

Mar 23, 2016 · Polycystic ovary syndrome (PCOS) in Women's Health

Im new to PCOS. I just had a hysterectomy in December 2015 after birth control was unable to control my bleeding. I am not able to take estrogen so my doctors put me on Megace until I could have surgery. Prior to that I wouldnt blees for months and when I would start, I would bleed heavy & not stop for months. This made me very anemic & I ended up in the ER. After my hysterectomy (everything out except my ovaries) I no longer bleed, of course but I still experienve some PCOS effects like unusual hair growth, thinning hair, hot flashes, constant fatigue and weight gain. My PCP wants me to try Metformin to regulate insulin & maybe help me lose some weight Ive gained. How do I know Metformin is right for me? Anyone taking it with good results? I already take alot of meds for another condition I have & dont like adding more needless pills to my routine. Anything else that can help PCOS? Im learning.

Mar 23, 2016 · Bleeding in Women's Health

I had a similar experience before and after I was diagnosed with PCOS. I would go for months at a time with no period & then start to bleed for months without stopping. I would bleed heavy & clots, soak pads just like you. My gyn checked me for fibroids & did an ultrasound & bloodwork to confirm PCOS. They wanted to use birth control since this is the only way to control it. I cannot take estrogen so that limited my choices. I would suggest talking to your doctor about birth control if you’re comfortable taking it. And rule out fibroids, polyps and cancer. Have you had bloodwork, ultrasounds & biopsy done? If not, those are important tests to get to the bottom of your PCOS & bleeding. I waited and ended up in the ER with a hemoglobin of 6.

Mar 23, 2016 · NPH (normal pressure hydrocephalus) in Brain & Nervous System

Do I have slit ventricle syndrome or possibly NPH? I am a 32 y/o woman w/a history of pseudotumor cerebri or IIH. Ive undergone 8 surgeries in the last 13 years for repairs and revisions of my shunts. My doctors dont know why I need 2 shunts or why I still have headaches & fatigue/lightheadedness. Ive had several reoccurances of papilledema & lost vision. My LP shunt overdrained years ago & caused a Chiari Malformation & resulting syrinx. It was replaced with a VP shunt but the LP was later reopened when I was experiencing PTC symptoms again. I had another episode of papilledema a couple months ago. But my headache symptoms were different from what Im used to feeling. I have waves of lightheadedness when I feel off balance, tenderness in my eyes at times & often a loud whooshing in my ears & a fullness in my ears. If I have head pain at all, it is usually sharp rather than throbbing & does not get better laying down. I suspect overdrainage but that would not be consistent with papilledema. My neuro-opthalmologist told me my left optic nerve is elevated but he sees no papilledema now. Yet, Im still having the symptoms I described above more than a month after my eyes are supposed to be showing normal pressure. Ive never had a shunt adjustment take so long to improve if the settings are right. It could simply be the shunt settings are wrong. But Im wondering if my symptoms are more like NPH or slit ventricle syndrome? Could my PTC diagnosis be wrong? My neurosurgeons stopped evaluating me when the neuro-op cleared my eyes. And I dont see a neurologist. How do I get answers?

Mar 23, 2016 · Brain Stent? Pseudotumor cerebri in Stroke & Cerebrovascular Diseases

Brain Stent?
I am a 32 y/o woman with a history of pseudotumor cerebri, acquired chiari malformation & syrinx. Ive undergone 8 surgeries for repairs and revisions of my shunts. My doctors dont know why I need 2 shunts or why I still have headaches & fatigue/lightheadedness. I suspect overdrainage. I feel strongly that my VP & LP shunt are failing to properly control the CSF. In recent years Ive read alot about stenting the transverse sinus instead of shunting. But my doctors wont do an angiogram to determine if I am a candidate. They say its too dangerous & causes strokes. Im wondering if there’s truth to that claim and has anyone here had a brain stent that was successful for PTC? Im running out of options here and living in pain & exhaustion every day.