Badges (1)

About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (19)

Nov 11, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

It may be pretty new. My doctor sent me to a small specialty pharmacy that had some kind of special promotion for the drug, which meant no co-pay (I’m on medicare and Blue Cross). When I saw my doctor (a pain management specialist) this morning he asked me if it had cost me anything; I took that to mean it’s pretty expensive if you have to pay for it, which suggests it hasn’t been on the market long (given Big Pharma’s behavior here in the US!). I know it’s not yet available in generic form. The manufacturer is Xenoport. I don’t know how your prescriptions work under Canada’s health care system, but if it’s free or at all reasonable for you, it’s worth a try. Check on the internet for more info on Horizant; perhaps make a printout for your doctor and pharmacist. It’s a timed-release pill, and it can therefore be taken in higher dosages, and it may be absorbed by one’s system in a different way from regular gabapentin. It was first prescribed for patients with night-time restless leg syndrome, but it has done wonders for the burning in my leg. It hasn’t completely eliminated the pain, but it is much more tolerable and I can concentrate on other things. I take one tablet, 600 mg daily. I take it at 5:00 p.m., which is what is recommended for people with restless leg, and it helps me sleep, as the burning often disrupted my sleep. The website lists some side effects, but fortunately I haven’t experienced any of them. Good luck!

Nov 7, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

2 weeks ago I started taking Horizant (gabapentin enacarbil), 600 mg per day, an extended release med. It has considerably reduced the burning in my right leg and foot. I had taken regular gabapentin, up to 900 mg a day, with no real results, so I was skeptical when a pain specialist prescribed this. Apparently it’s absorbed by the body differently from regular gabapentin. It has helped me tremendously. I still have some of the burning sensation, but it’s much less intense than it was before. Worth a try. I think it’s supposed to be available in generic form soon.

Oct 20, 2016 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I would very much like to see a discussion on back surgeries and non-surgical options.

Oct 20, 2016 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Go to barrowneuro.org to see a list of affiliated doctors and phone numbers to call to request an appointment. There is detailed info on each doctor with their specific specialties within the field of neurology and neurosurgery, so you can request an appointment with whatever doctor best suits your needs. There is also info on each’s doctor’s training, experience, etc. The website also offers a second opinion option. For a flat fee of $100 you can submit your MRI or other imaging results, together with questions and concerns you may have, and one of their doctors will review your case and give you his/her opinion. If you decide you want their recommended treatment, you are under no obligation to have it done through Barrow–you can share the info with your own doctor wherever you live. I used this option 3 years ago and got the second opinion within a couple of days, and they were able to schedule me for surgery within a couple of weeks. I was getting the run-around with a doctor here, so I chose to travel to Phoenix for surgery. I got excellent care there. Barrow is a teaching institution for neurology and neurosurgical residents, so the hospital is fully staffed with experts in the field. I may use them again to deal with my current issues. If you have the time and resources to travel to Phoenix this is an excellent option; they accept most insurances. There is a Hampton Inn directly across the street from the hospital which is super convenient. Good luck!

Oct 17, 2016 · Benefits of physical therapy in Chronic Pain

Good luck, and let us know how it goes!

Oct 17, 2016 · Benefits of physical therapy in Chronic Pain

Yes, keep going to PT! Perhaps something other than machines would help more? After both my hip replacements, I had a week of inpatient rehab and then several weeks of outpatient PT. Never once was I connected to any machines. I’ve been lucky to have therapists who work directly with me and explain why I’m feeling the way I do. Can you ask your surgeon for advice on what alternative kinds of PT might be available and advisable for you?

Oct 12, 2016 · Neuropathy pain in my left foot and lower left legs in Chronic Pain

I’m feeling pessimistic–it seems that with all of you out there suffering from this neuropathy, if there were a sure-fire remedy one of you would have found it. I too used to be really active–walking, hiking, ice skating. I’d hoped to spend my retirement traveling and keeping up with my grandchildren, so this is not easy to accept. I’m thinking of trying to find a psychotherapist who can help me accept my life as it is, not as I would like it to be.

Oct 12, 2016 · Neuropathy pain in my left foot and lower left legs in Chronic Pain

I hear you–I would just like to be able to walk around the block as well. Good luck, and be sure to let us know if the braces are of any help.