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Bone, joint, and muscle disorders, Chronic pain, Healthy Living, Mental health disorders, Women's health issues, Other

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Tue, Sep 24 8:06am · When they ask:” any pain today? On a scale... with 10 being the worst in Chronic Pain

@gingerw Ginger, I have the ability to break down and give a number to different pains. My doctors think that I’m fortunate to do so, I take it as having too many pains.

Mon, Sep 23 11:01am · What Distracts You From the Pain? in Chronic Pain

@oh_suzie_q A while ago you said that you were a colorist on Design teams and that helps you relax from having pain. How is that going? Are you still designing? I'd love to know!

Wed, Sep 18 7:14am · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

@jmweissler I’m so sorry about your mom. I understand what a difficult time this is. Please take care of yourself. My prayers are with you

Tue, Sep 17 5:12pm · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

@rwinney Hi Rachel,
In one post you asked about lidocaine infusions, if I had them. I don't and that was one of the items I talked to my doc about. He doesn't do them. He has not seen enough relief in patients he and his partners have tried them. Also he said with me having hypertension it may not be good. It is used with epinephrine to raise blood pressure. The pain management Doctor is supportive for me to try mm. I did have RFA on my lumbar spine about 8 years ago. It wasn't until late last year that I had those old familiar pains. I've delayed the procedure for about 6 weeks though. My husband had 2 C spine fusions in 2018. He is now fused from C3 – C7. Next week he will have A spine stimulator installed in his spine so "hopefully" he will get some pain relief. The following week it will be taken out, replaced if successful with Abbott spine stimulator. Since our Doctor is an hours drive, it will put quite a bit of strain on me. It hurts my legs to drive. Our 28 yr old son lives with us but he starts a new job this Thursday. You gotta take the good and the bad right?!

Mon, Sep 16 1:47pm · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

@rwinney My mom was on opoids from a young age too. While pregnant with me she was put on Demerol to stop early contractions. It worked in the 1960's. Believe it or not I was NOT born addicted or anything. In fact, Mom said .I was the healthiest! But she kept taking opoids for different aliments broken vertabrae in multiple levels among the reasons. Like your mom,mine felt worn down and that's how I feel at 55. Nearly 30 years of pain will do that to anyone.

Mon, Sep 16 1:37pm · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

@rwinney Thank you for your kind words. We all go through so much when it comes to pain. I will check with my pain management doctor tomorrow about the infusion. Friday I was supposed to have RFA on lumbar spine, but my insurance company decided to hold things up. Next week I will see a medical marijuana provider to see if I qualify for medical cannibus. At that point I will take a look between the two options.

Wed, Sep 11 12:47pm · Gratitude Discussion Group in Just Want to Talk

I am so very grateful that on Sunday September 22 I see a doctor for the 1st step to get on medical marijuana! As it turns out my primary care physician is also a licensed Medical Marijuana Provider. Recently I had a visit to his NP and we talked about how much pain I still had although I'm on Xtampza (oxycodone long acting) and a 15 mg instant relief oxycodone as well.

Tue, Sep 10 8:14pm · My son decided to disappear without a trace at 54 years old. in Loss & Grief

@ihtak46 Kathi this is a lovely photo of you and your daughter (what is her name?) Was this pic taken on your recent girls trip before she passed so suddenly? I'm sorry you turned to us but feel no one is replying. I'd like to help yobu with that if I can. PLEASE be assured that you are getting responses to your postings.Will you please give me some information–how are you accessing Connect? Via email or going to the Mayo Clinic Connect web site? How this works in a nutshell is you post in one of the groups LOSS & GRIEF etc. Usually the next day but sometimes minutes later someone responds. You then get notification in your email or just a notification on Connect at the bell up at the top. This format is different than some message boards I have participated in where there seems to always be someone online–the type when you see the group, join, ask a question/post feelings and someone instantly responds.Does that make sense?
Well it sure sounds like you had a rough day yesterday. I can remember feeling like that when my mom died. My head hurt, my eyes hurt from constant sobbing. I was so glad when sleep finally overtook my weary body and mind. My husband had to step in and take me to the doctor to get a mild sedative because I just could not function. My mom and I were so close.Her death was totally unexpected. She died of septicemia. She was found on the floor of her home after falling three days earlier. Her beloved Golden Retriever was right by her side. I lived in Virginia, she lived in NJ. I went and took the dog home with me, visited her in the hospital where she now was in stable condition. My mom thought she knew everything when it came to health and medicine. Drove me crazy. Years earlier she was diagnosed and sucessfully treated from colon cancer, the very thing my father died of at the age of 51. This time mom wasn't feeling well and thought for sure her colon cancer had returned. She would not go to the doctor due to her fear. Well in the hospital this time it was discovered she had a severe UTI. The hospital doctors treated her with everything they could but she wold not survive. She passed away November 17 2002 @ 4 am. You just never know. The meds helped and I began therapy with a terrific counselor.

Kathi I saw this on the Compassionate Friends web site https://www.compassionatefriends.org/find-support/to-the-newly-bereaved/
"The Compassionate Friends also hosts the Worldwide Candle Lighting the second Sunday in December, officially at 7 p.m. local time around the globe, creating a wave of light in memory of all children who have gone too soon." I think that would a lovely way to honor your daughter and all that she meant to the people in her life. What do you think? Do you think seeing a physician and a counselor would be something you could do? How is your husband holding up?
Wishing you peace.
Jen, Volunteer Mentor