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Dec 9, 2017 · multiple meningioma brain tumors in Brain Tumor

Thanks, best wishes for your courage to fight these invasions to your brain and will to use every weapon. Certainly lifted my spirits with the knowledge of your defensive actions.Appreciate your support, many thanks for your message.

Sent from Yahoo Mail on Androidpegorr

Dec 18, 2016 · Inoperable Brain Tumor in Brain Tumor

Look into research at Rush Medical Center of Chicaga. There is effort to zap tumor exclusively with shooting electrons into tumor reducing only to white dust. This is the only alternative to the 2 efforts open to your sister. Call them, why have you got to lose.@

Nov 16, 2016 · multiple meningioma brain tumors in Brain Tumor

Barbra, my neurosurgen does not want me to do anything.just let it to slowly grow. My heart goes out to you as my instinct is fear of sight problems. Does Mayo MD consider studying Rush Medicals new ZAP as a possibility for you? John’s Hopkins ‘s is working on drug delivery to the tumor. Perhaps these are too young to consider. I keep looking at the future as I have time. Mayo is doing what is currently experienced best effort. Hope I haven’t muddied your thinking. My prayers are with you. Best wishes for successfully completeing thisMedical procedure.EleanorSent from Yahoo Mail on Android

Nov 15, 2016 · multiple meningioma brain tumors in Brain Tumor

Nice to hear from you Colleen. Correct, no telephone #. No I’m not a part of this effort. I did the 2nd reference after I had another MRI evaluated by a doctor specialist at Rush University Medical Center twice after a period of time exceeding 1year. Both times this MD pleaded with me to do nothing. Last saw him 6/28/16 and he told me not to have another MRI and not to contact him until I have some evidence of noticeable change. The MRI’s show slow growth. I don’t know if he knows of this research, I learned of it this by reading the Rush newsletter of today. Research is at Rush’s Brain and Neck speciality. Work looks to have promise as only tumor is destroyed, not OK cells. Trying to keep aware of procedures. Too many of the connect participants have multiple surgeries and radiations; not for me as I fear any surgery. Have not had my knees worked on either as my fear exceeds the debilitation and pain. I’ll inform my local physician who might have a talk with my Rush MD. Who might want to expand on this as doc to doc.
Thought Barbara would profit from this information even tho as it’s in its early days.
Thanks for remembering me as I too would enjoy having a cup of tea(green) with you and discussing what Mayo’s non-surgical successes are.

Nov 15, 2016 · multiple meningioma brain tumors in Brain Tumor

Read the research being done at Rush Medical Center, Chicago. They are fighting head tumors by putting a fiberglass injector into the tumor and explosively shooting electricity into the tumor and reducing it to white trash. Explosion goes to tumor not to any other cells. This was reported in their news report Nov. 14, 2016. Sorry not to recall the name of the woman doctor in charge of the project. Suggest you call them. I’ll get back to my Facebook to bring back the newsletter.colleenyoung has my name post, but I’ve long ago lost it.

Aug 31, 2016 · Meningioma - I'm scared to watch and wait in Brain Tumor

This is my 2nd year of knowing that this exists and is growing slowly. Found out about it by accident. The docs don’t want to have anything done to this tumor that sits between my brain and my skull. Also they don’t want me to have any MRIs. The #1 doc doesn’t want to see me again and the #2 doc wants me to contact him if and when I have any of the symptoms such as the eye problem you were told about. I’ll keep looking for info that suggests new treatment. Thanks for your contact.

Apr 25, 2016 · Meningioma - I'm scared to watch and wait in Brain Tumor

Local neurosurgins have not done anything that would suggest they want to see me again. I was angry when the leading doctor shrugged his shoulders and voiced a trailing off comment that he might do somthing if I were 65. That’s why I went to my primary doctor to have him communicate with them. Doing nothing, feeling abbondanded, will not prevent me from exploring this problem, and looking for support from my family physician. I clinked on each of the contacts you cited in your initial response to my message of 04/24/16. Commentarys were kind but medically “over my head” and still left me frightened. Thanks for yor help Colleen Young.

Apr 24, 2016 · Meningioma - I'm scared to watch and wait in Brain Tumor

Colleen Young: Thank you for your response to my report, today, 04/24/16.
They did not explain what I could expect. No follow up appointment was made. I asked my primary care physician to examine the mri and for him to talk to the neurosurgines. He and I met after he talked to them and he assured me that the tumor, unidentified as a medical term specific, was a very slow growth and could be a problem if my speech became irregular. That is where we left it. I assumed that it might be dangerous to have another mri or to consider any action that would involve surgery/radiation. I looked into the internet and found, “Next generation immunotherapy offers new hope for beating brain cancer.” Science Translational Medicine, 02 March 2016. A little amaturish knowledge can be dangerous and far too early for application.
So I thought to use connect for information and comfort. Eleanor Seminara