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Sat, Mar 2 8:43pm · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

I had brain surgery in 2014 for a 3.5 centimeter tumor on my brain stem. Had the 12 hour surgery, still have 2 percent on my brain stem . Since my surgery , I’ve bad balance issues due to hearing loss in left side. Depending on barometer depends on my day, good, bad or other issues. I wish you all the luck in the world and many many blessings.

Sun, Feb 24 7:52pm · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

@hey vickied117. Hello I had brain surgery March 10, 2014. My balance when the barometer changes can be devistating to my balance. I can’t tell
Where noise is coming from because I lost my hearing in my left ear due to brain tumor. It was a schwanoma. Every day is challenging. I am alive , staying positive. And thankful💕

Sun, Jan 27 3:16pm · extreme outer ear pain in Ear, Nose & Throat (ENT)

Hello: I’ve had this problem on my left ear since having Btain surgery for a tumor on my brain stem. Everything bothers that ear. I get ear pain a lot. And sometimes it’s on the tips of my ears. I use Lavender oil, only thing that seems to calm the nerves.

Sat, Jan 26 12:00pm · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Hello: I had brain surgery in 2014 for a begine brain tumor . It was huge, 12 hour surgery and I still have 2 percent on my brain stem that causes me issues, but it’s better than the alternative. Now I have an mri once a year to make sure it’s Not growing. If it does grow and cause me issues , I will need spot radiation I’m told. Not looking forward to that . I pray each and every day it doesn’t grow. My life now after Brain surgery is difficult enough.

Sat, Jan 26 11:54am · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Well yes it’s been a journey after my Brain surgery. My balance is horrid some days. My eyes get more tired if I do too much. Motion drives my head crazy. It’s been 4 years since my surgery and my nerves on the left side of my brain are still very tender . I look at it this way. It’s been an unbelievable thing that happened too me. It’s taught me a lot , and each day is a challenge. My son says after my surgery , my thinking and thought pattern is off and I know it is. Just didn’t feel anyone really noticed.

Oct 2, 2017 · acoustic neuroma in Brain Tumor

Hey Saucy> Yes I had a 3.5 tumor (acustic Nuroma) removed from my brain stem in 2014.They are VERY rare.1 in 100,000 people get them, go figure I did. Yea I can’t fly any more after my surgery, Air pressure messes with my head. Whatever you do. Listen to your doctors, surgeons, and PLEASE ASK Questions…Thank God my daughter is a RN nurse. I’m 61 years old, I was 59 when they found this tumor, because I had suffered from earaches for many years. Routine vist to my doctor, Bammm. Acoustic Nueroma after MRI was taken. I still have 2 percent on my brain stem nerves that go to my face, I have to get MRI eery year to make sure its not growing.
I have eye issues often, because the remains is still resting on my eye nerve…Not fun. But it could have been a lot worse

Oct 2, 2017 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

I was diagnosed with my Swannoma in 2014, Dr Huong is my ENT at The Mayo in Minneapolis…Go see her, She is AWESOME, The sooner they find its size out, the better.My surgery was a bit difficult because I’m alergic to lots of drugs and anasteshias.So keeping me asleep wa a bit of a chore for them, I did a lot of testing before my surgery.
Unfortunately Ive lost a lot of balance due to the surgery. Enough that I’ve had to go from working a full 40 hour work week to 4-5 hours , three days a week. I cannot tell where sound is coming from, an my balance is way off some days.
Everyones after surgery state is different I’m told…Good luck, I will keep you in my prayers, Please let me know what the CT scan finds…And how you are doing..
I find it interesting whenever I see a new post on the MAYO blog…

Oct 2, 2017 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Hello Saucy: I saw u posted that your having a ct scan for tumor in your ear scheduled. I had ear infections for 9 years, had massive amounts of anti-biotics. after ct scans, biopsy, and cultures. My doctor Finally did a MRI..Unfortunately an MRI is the only way they can see it. Sooo if I was you., and to save some time and frustration, just opt for the MRI.
By the time they found my tumor in my ear canal. It was 3.5 centimeters across and was pushing on my brain stem and causing hydpcephalys. I am by no means trying to scare you. I underwent a 12 hour surgery, …If i would have not had to take all the antibiotics for years for ear infections, they may have found it sooner.
But as for now, because of my surgery, I lost complete hearing in my left side….Who is your Doctor? Talk to her or him…If they know theres a tumor in your canal, they should be doing a MRI