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Posts (57)

Oct 2, 2017 · acoustic neuroma in Brain Tumor

Hey Saucy> Yes I had a 3.5 tumor (acustic Nuroma) removed from my brain stem in 2014.They are VERY rare.1 in 100,000 people get them, go figure I did. Yea I can’t fly any more after my surgery, Air pressure messes with my head. Whatever you do. Listen to your doctors, surgeons, and PLEASE ASK Questions…Thank God my daughter is a RN nurse. I’m 61 years old, I was 59 when they found this tumor, because I had suffered from earaches for many years. Routine vist to my doctor, Bammm. Acoustic Nueroma after MRI was taken. I still have 2 percent on my brain stem nerves that go to my face, I have to get MRI eery year to make sure its not growing.
I have eye issues often, because the remains is still resting on my eye nerve…Not fun. But it could have been a lot worse

Oct 2, 2017 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

I was diagnosed with my Swannoma in 2014, Dr Huong is my ENT at The Mayo in Minneapolis…Go see her, She is AWESOME, The sooner they find its size out, the better.My surgery was a bit difficult because I’m alergic to lots of drugs and anasteshias.So keeping me asleep wa a bit of a chore for them, I did a lot of testing before my surgery.
Unfortunately Ive lost a lot of balance due to the surgery. Enough that I’ve had to go from working a full 40 hour work week to 4-5 hours , three days a week. I cannot tell where sound is coming from, an my balance is way off some days.
Everyones after surgery state is different I’m told…Good luck, I will keep you in my prayers, Please let me know what the CT scan finds…And how you are doing..
I find it interesting whenever I see a new post on the MAYO blog…

Oct 2, 2017 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Hello Saucy: I saw u posted that your having a ct scan for tumor in your ear scheduled. I had ear infections for 9 years, had massive amounts of anti-biotics. after ct scans, biopsy, and cultures. My doctor Finally did a MRI..Unfortunately an MRI is the only way they can see it. Sooo if I was you., and to save some time and frustration, just opt for the MRI.
By the time they found my tumor in my ear canal. It was 3.5 centimeters across and was pushing on my brain stem and causing hydpcephalys. I am by no means trying to scare you. I underwent a 12 hour surgery, …If i would have not had to take all the antibiotics for years for ear infections, they may have found it sooner.
But as for now, because of my surgery, I lost complete hearing in my left side….Who is your Doctor? Talk to her or him…If they know theres a tumor in your canal, they should be doing a MRI

Jun 8, 2017 · extreme outer ear pain in Ear, Nose & Throat (ENT)

Well, I’m glad to know I’m not being crazy when I go too myENT with this issue, I’ve had outer ear pain about every 2 or 3 months, comes and goes. Seems it gets worse for me when I lay on it. Ive been to my ENT, and lat time it was MRSA….Yea…..But now the say thats gone, and the pain I feel could just be from my Brain surgery 3 years ago….Cartlidge healing????? It still hurts some days and my ENTgave me creme for my ears to stop the itching…Helps some, doesn’t stop the pain at the base of my ear…

Apr 25, 2017 · #MayoClinicNeuroChat on Acoustic Neuromas with Dr. Weisskopf in Brain Tumor

Hello:,
I didn’t know The Mayo did endoscopic for brain tumors.
When I had my Brain surgery, I had 4 neurosurgeons who did my surgery, and they flip-flopped every 4 hours, each doing a separate part of my surgery,
Endoscopic for brain surgery??I ve never heard of it at the mayo…

Apr 23, 2017 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

GoodMorning KKK:
I don’t know where you live, or who your Doctors are. But the U of M ,performs 300 of these brain surgeries a month.
there’s No median age , when you consider 1 in 100.000 get an Acoustic Neuroma.I have GREAT Nueosurgeons there. I trust them…

Apr 23, 2017 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Good Morning dinjian:
I will be 61 this year. I had my brain surgery in 2014. Ive hearing loss in my left side. Balance some days is a bit funky.
But like you, Ive found ways that work for me to cope with the after effects of the surgery.
You gotta realize, there is NO brain surgeon that can predict what your life will be like after this surgery. Everyone is different.
I just refuse to let Brain surgery keep me from doing the things I love to do. So my life is a daily challenge….

Apr 23, 2017 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Good Morning Pedie:
Yes what I’ve learned being a brain patient, is “OneDay At A Time” is a good motto to have…..I may not be able to do things like I did before surgery. But I still Love Life….May Not be the life I had before surgery, but I’ve learned to deal with it…The Good Lord Never gives us more than we can handle. He just helps us find better ways….