About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (64)

Wed, Oct 23 5:16pm · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

I had a 3.5 centimeter schwanomma removed from my brain stem March 10, 2014.
Ask questions of the surgeons before so you know what your facing after the surgery.

Mon, Sep 30 6:52am · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Lol yea 1 in 100.000 and I got one.

Sat, Mar 2 8:43pm · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

I had brain surgery in 2014 for a 3.5 centimeter tumor on my brain stem. Had the 12 hour surgery, still have 2 percent on my brain stem . Since my surgery , I’ve bad balance issues due to hearing loss in left side. Depending on barometer depends on my day, good, bad or other issues. I wish you all the luck in the world and many many blessings.

Sun, Feb 24 7:52pm · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

@hey vickied117. Hello I had brain surgery March 10, 2014. My balance when the barometer changes can be devistating to my balance. I can’t tell
Where noise is coming from because I lost my hearing in my left ear due to brain tumor. It was a schwanoma. Every day is challenging. I am alive , staying positive. And thankful💕

Sun, Jan 27 3:16pm · extreme outer ear pain in Ear, Nose & Throat (ENT)

Hello: I’ve had this problem on my left ear since having Btain surgery for a tumor on my brain stem. Everything bothers that ear. I get ear pain a lot. And sometimes it’s on the tips of my ears. I use Lavender oil, only thing that seems to calm the nerves.

Sat, Jan 26 12:00pm · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Hello: I had brain surgery in 2014 for a begine brain tumor . It was huge, 12 hour surgery and I still have 2 percent on my brain stem that causes me issues, but it’s better than the alternative. Now I have an mri once a year to make sure it’s Not growing. If it does grow and cause me issues , I will need spot radiation I’m told. Not looking forward to that . I pray each and every day it doesn’t grow. My life now after Brain surgery is difficult enough.

Sat, Jan 26 11:54am · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Well yes it’s been a journey after my Brain surgery. My balance is horrid some days. My eyes get more tired if I do too much. Motion drives my head crazy. It’s been 4 years since my surgery and my nerves on the left side of my brain are still very tender . I look at it this way. It’s been an unbelievable thing that happened too me. It’s taught me a lot , and each day is a challenge. My son says after my surgery , my thinking and thought pattern is off and I know it is. Just didn’t feel anyone really noticed.

Oct 2, 2017 · acoustic neuroma in Brain Tumor

Hey Saucy> Yes I had a 3.5 tumor (acustic Nuroma) removed from my brain stem in 2014.They are VERY rare.1 in 100,000 people get them, go figure I did. Yea I can’t fly any more after my surgery, Air pressure messes with my head. Whatever you do. Listen to your doctors, surgeons, and PLEASE ASK Questions…Thank God my daughter is a RN nurse. I’m 61 years old, I was 59 when they found this tumor, because I had suffered from earaches for many years. Routine vist to my doctor, Bammm. Acoustic Nueroma after MRI was taken. I still have 2 percent on my brain stem nerves that go to my face, I have to get MRI eery year to make sure its not growing.
I have eye issues often, because the remains is still resting on my eye nerve…Not fun. But it could have been a lot worse