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Posts (27)

Aug 25, 2017 · Anyone Else With PTSD? in Mental Health

I too suffer from PTSD and chronic depression. During the ’80s and early ’90s, I suffered from tremendous pain in my back and down my right leg. I had had two back surgeries when I was 17 and 18; one was for a spinal tumor. After my second surgery, the pain down my leg came back. By that time I had moved to a different town, so I went to see a neurologist. He told me all I had was a cyst on my spine and it shouldn’t be causing me any pain. I asked him whether it could be another tumor, and of course, he said no. So I went home and tried to deal with my pain. I saw him several times more over the next seven years, telling him that my pain was getting much worse each time I saw him. I also saw a handful of other doctors trying to find the reason for my pain. They all told me it was all in my head, or I was looking for attention, or I was just looking for pain pills. Finally, after seven years of agonizing pain, and taking 56 Advil a day for the pain, I landed in the emergency room throwing up blood from a bleeding ulcer from all the Advil. The nurse gave me the name of another neurologist to see. So I went to him, and he did an MRI on my spine. What came back really threw me for a loop. I indeed had another spine tumor, this one was the size of three large grapefruits, and when it was finally removed, it weighed 8 pounds. Because the tumor was so large, I had to have one surgery on my back and one surgery from the front, because it had grown through my sacrum and into my pelvis. They had to cut the nerve roots at the spine so that the tumor would not grow back. Because of that, I could no longer walk. My right leg would not work. During that time I was in pain, and the doctors telling me it was all in my head, my family didn’t believe that I was really in pain. I spent seven years living in my room never leaving to go anywhere and angry as hell that I had to live that way. It has taken me 26 years to deal with all I went through, but I still can’t get past the anger I feel towards all the doctors who wouldn’t believe that I was in so much pain. I have had to have seven spine surgeries in all, with my last one being in 2016. I now have to walk with a cane and have so much metal in my spine just to hold it upright. I hurt my back when I was 16 and am now 52 and still dealing with pain and anger. Of course, it’s not the same pain I had back then, but I still have to live with pain every day. And now with the crack down on people with chronic pain and getting the medicine we need just to live a normal life because, of course, all of us with chronic pain abuse our pain meds, I might not be able to get the pain medication I need. It is really frustrating. Thank you all for letting me vent. It does help to get this off my chest.

Aug 9, 2017 · Treating Osteoporosis in Bones, Joints & Muscles

Wow! You’ve really been through the ringer. I’m 52 and just started taking Forteo 4 months ago. They can’t “measure” my spine because of all the titanium I have, but my hip is -3.9, I was at -.9 last year, so something really took a turn for the worse. I know I went through menopause early, at 30, but I didn’t think I’d have osteoporosis so young. I’ve been on estrogen replacement therapy since my hysterectomy. But with all my spine problems, I’ve got to do whatever it takes to improve my bone mass. I wish you luck on your therapy treatment.

Aug 9, 2017 · Treating Osteoporosis in Bones, Joints & Muscles

Be careful when taking more Vitamin D, I can’t remember the exact number, but from what I’ve read on Mayo, you can’t take more than 4000-5000 of D a day, or it can cause problems.

Aug 9, 2017 · Treating Osteoporosis in Bones, Joints & Muscles

I also wish now that when I had osteopenia that my doctor had put me on Forteo then, instead now that I have osteoporosis. But, so far, I have not had any side effects from the Forteo. I just hope it works, my osteoporosis is so bad, and with severe spine problems, the last thing I need is to crack a vertebra. Luckily, I have plenty of titanium in my lower spine and neck. I’m glad to hear that others have not had any problems with Forteo. I do have some reservations about it, but I need to increase my bone mass.

Aug 1, 2017 · Anyone Else With PTSD? in Mental Health

Yes @parus, I too have PTSD. I’ve had it since the mid-1980s. I’ve been in therapy for the last seven years for depression and PTSD, and it has been a tremendous help to me. I’m finally starting to live again, I even got a part-time job as well as working from home (I am a book editor). I wish I could convince my niece to get therapy, she too has PTSD/depression and won’t even consider the notion that she has it or that she needs therapy. Instead, she posts sad messages on Facebook.

I don’t post all that often on here, but if you ever need anything, I hope you’ll come here for support. This is a wonderful community.

Jul 16, 2017 · Chronic Back Pain for Years in Spine Health

Hi Marie, I’m Juliann. Your words, “all I know is pain, and how it has robbed my life,” really struck a chord with me. I’ve been in pain for 37 years, and suffer from treatment resistant depression and PTSD. I’ve been on anti-depressants most of my life, and until lately, they did nothing for me. But after getting on the right medication and getting a part-time job, I’m doing much better. I still struggle with how pain and doctors and robbed my life from me. I do see a therapist once a month and it helps a lot. I do use a Fentanyl patch for my pain, maybe it would help you too. Please hang in there, life can get better.

Jul 16, 2017 · Chronic Back Pain for Years in Spine Health

Hi jlfisher56, I’m Juliann. I certainly understand your frustration. I am 52 years old and have been in since I was 16. I have had 7 spine surgeries with extensive fusion, rods, and screws in both my neck and lower back. I’ve also had 23 surgeries overall. I use a Fentanyl patch for my chronic pain. It really helps. It keeps me from having to take my morphine on a daily basis. Now I only need my morphine about once a month, which is amazing for me. I also take Robaxin, a muscle relaxer, for all the leg cramps I get. My story is very long; my therapist thinks I should write a book about my 37-year journey in pain. I’ve had some strange and really horrible experiences with doctors over the years. Hang in there, once you get on the right medication, it makes a world of difference.

Jul 2, 2017 · Treating Osteoporosis in Bones, Joints & Muscles

Hi @heritage1955, I too was just diagnosed with Osteoporosis in April. I’m at -3.7 and I’m only 52. I was pretty shocked at how bad it is. My doctor put me on Forteo, which is the only medication that builds bone. I give myself a shot every day. It’s really not as bad as it sounds, the needle is so small I barely feel it. And, of course, I have upped my calcium intake. I try to take 500 mg three times a day. I read at the Mayo Clinic website that your body can only absorb 500 mg at a time, so anything above that is just a waste. But if you take Protonix or anything to help acid, you need to take the calcium at least three hours a part. The medication keeps you from absorbing the calcium. It’s hard to do when you take Protonix twice a day as I do, but I get up early to take my meds so I can get my daily calcium. I also take 2000 IU of Vitamin D every day.