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Posts (7)

May 2, 2016 · Anaplastic astrocytoma: Can anyone recommend a great neurosurgeon? in Brain Tumor

Sorry to hear about your daughters diagnosis. My daughter has been diagnosed with same tumor .. Where are you considering having her surgery at ? My daughter had surgery at siteman in St. Louis . Her surgeon is dr luethardt , he is an amazing surgeon. Also at May in Minnesota , dr parney is supposed to be very good .

Mar 23, 2016 · Recurrent anaplastic ogioastrocytoma or necrosis? in Brain Tumor

One more thing I wanted to ask you .. Have you had necrosis? And if you did how did they treat it ? Thank you so much for all your knowledge .. Talking to someone going through it helps a great deal .. So awesome to hear good news about Mayo .. I know for sure we will be going there for an opinion . Wish you lots of great health in the future..

Mar 23, 2016 · Recurrent anaplastic ogioastrocytoma or necrosis? in Brain Tumor

My daughter is being treated in st.louis at siteman cancer center . We went to Houston for an opinion and they wanted to operate but her surgeon doesn’t want her having anymore surgeries . I’ve been looking into mayo in MN , she has a MRI end of April , I thinking we will try to go after that . Do you like mayo ?

Mar 23, 2016 · Recurrent anaplastic ogioastrocytoma or necrosis? in Brain Tumor

Wow you have had a lot of experience . My daughter was diagnosed dec, of 2014… This is all new to us ,and very scarey . She is dealing with necrosis , so they think . Every time she gets taper off steroids she has a seizure and they put her back on them .. Seems she has been dealing with this since her surgery , I’m worried about what they can do for her .. Lately she has become so tired , I have a hard time getting her to do anything even though she says she doesn’t feel bad . I have never heard of ur kind of tumor , it must b rare . What grade is ur tumor .. Sorry for all the questions , I’m just so worried .

Mar 23, 2016 · Recurrent anaplastic ogioastrocytoma or necrosis? in Brain Tumor

Thank you , so comforting to hear that she is not alone . Do you mind if I ask what kinda of tumor you have . What treatment have you been through ?

Mar 11, 2016 · Recurrent anaplastic ogioastrocytoma or necrosis? in Brain Tumor

My daughters is in the frontal lobe as well .. I’ve never heard of this treatment ur husband is having … How and where is he having it done and is it helping ?

Mar 10, 2016 · Recurrent anaplastic ogioastrocytoma or necrosis? in Brain Tumor

I am new to the group. My 28 year old daughter had been dx with anaplastic ogioastrocytoma 3 . She has had surgery , proton radiation and temadar . She is now dealing with necrosis, but it’s difficult for them to be absolutely positive it’s necrosis and not tumor growing back.. Was wondering if anyone else has dealt with necrosis ?