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Posts (481)

2 days ago · azithromycin by itself for post treatment protocol in MAC & Bronchiectasis

@windwalker Thank you! Remind me to let you know if I forget.

2 days ago · azithromycin by itself for post treatment protocol in MAC & Bronchiectasis

@128128terry11t Yes I have stayed on the antibiotics big 3(I had a big infection and 2 cavities), I have a scan next week, the last showed nodules again but they did a bronch which did not show MAC, such a complicated disease.

3 days ago · azithromycin by itself for post treatment protocol in MAC & Bronchiectasis

Hi yes I have MAI I have been on the big 3 antibiotics for around 5 yrs and also did a year of inhaled amikacin last year, and finally got a clear sputum. A long time coming! I had nodules and cavities.

3 days ago · health at diagnosis in MAC & Bronchiectasis

@nannette I also hate the wedge pillow and I think sometimes it makes me worse now(seemed ok the first few years) as my position maby puts pressure on my sphincter stomach muscle and the acid comes up. My GERD comes, stays for along time then goes, not sure why, but I hate it! I also feel very tired with the reflux more short of breath, its nasty.

6 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@jasmine321 Thanks for the update. Sorry to hear it is worse. I think we are put on daily meds for cavities or quite an invasive infection, The ringing in the ears is not nice however my eye dr said nobody has it worse than others so try to ignore it and you wont notice it anymore, it worked for me. Talk to your Dr if you think he may be wrong. All the best Heather

Thu, Mar 7 8:49pm · Survey about Non-Tubercular Mycobacterium - please participate in MAC & Bronchiectasis

I just completed the survey. interesting

Wed, Mar 6 3:43pm · Extreme fatigue in MAC & Bronchiectasis

@mariierod123 Same with me.