@debminuet The meds knocked me out also for around 18mths then I adjusted a bit, still tired but able to do more, pretty bad, but worth it to this point. Take care
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@vetnyregr My Dr said she wrongly put me on them daily for 2 years, it should have been daily for cavities, she had not told me I had cavities for 2 years or I could have corrected her. Yes its a very long time on the big 3 but only a year on Amikacin inhaled, no I haven't had infused at all. My cavities did close on their own but they left a small scar, which I guess would also happen with surgery. I hope yours take alot less time, and hope you are on daily! The big three and Amikacin is a good combination.
Sun, Sep 1 5:32pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis
@windwalker Take care and stay safe.
Thu, Aug 29 4:47pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis
Thanks @anniepie, it is usually a very busy site, Im sure everyone will return soon.
@beatitnow Unfortunatly I have been on the big 3 3x week and daily for around 5 years now, yes side effects, mainly tiredness and reflux. I am going off the big 3 in a few months and am looking forward to it as far as side effects but also a bit scared the bugs could return. I did have food sensitivities for a while but not now, never sure if its menopause, MAC or the meds. I hope they can get you sorted soon with your nasty side effects soon. The only advice I can give is eat well and exercise as much as you can.Take care and let us know how you are doing. Heather
@hydrang3a I was on Arikayce for a year. For me its tricky as I changed to daily meds the same time as I changed to Arikayce so I am not sure which took out my cavities, I feel it was the Arikayce as I was on 3 x week meds for 3years before going to daily with no success at all. But after a year of daily and Arikayce I was clear of MAC. Take care Heather