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3 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@lorifilipek Thanks for that info, I have subscribed to them. Fingers crossed for all of us.

Thu, May 21 4:54pm · 3 Months in with 7% Sodium Chloride in MAC & Bronchiectasis

good luck on the sputum test @windwalker

Thu, May 21 4:53pm · Two bits of good news!! in MAC & Bronchiectasis

@rits That is fantastic news,

Fri, May 15 7:41pm · 3 Months in with 7% Sodium Chloride in MAC & Bronchiectasis

@bluesplashgirl and @sueinmn I wish you both great results, let us know how you get on.

Fri, May 1 4:40pm · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@sounder the Pari Eflow is a fantastic machine. My Dr said she had a patient with a pari for 20 years and still going strong. I have one but diddnt realise it was the only machine for using Arkirice! We do not have that follow up and med delivery in New Zealand, thats fantastic.

Fri, May 1 2:02am · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

Hi @windwalker @irene5 Yes it is exactly the same as nebulising saline. But you may cough at first so sip water. Gook luck

Wed, Apr 29 9:39pm · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@laura34 Yes I had the burning in my lung area, It was 5-6 years ago now, I havnt had the burning since my mac has gone, my dr diddnt seem interested in it which was awful. I think mine was at its worst if I went for a fast walk, but would come on any time. Are you on the big 3 daily or 3x a week, if mac isnt going your Dr may up it to daily meds(if not now) and ask if Amikacin inhaled may help you. I went 3 years, 3x week meds and no change, then on daily meds and Amikacin all my cavities disappeared and most the nodules, I feel much better. Take care Heather