Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (523)

Thu, Sep 5 4:25pm · Extreme fatigue with MAC in MAC & Bronchiectasis

@debminuet The meds knocked me out also for around 18mths then I adjusted a bit, still tired but able to do more, pretty bad, but worth it to this point. Take care

Wed, Sep 4 3:53pm · In shock after MAC diagnosis in MAC & Bronchiectasis

@vetnyregr My Dr said she wrongly put me on them daily for 2 years, it should have been daily for cavities, she had not told me I had cavities for 2 years or I could have corrected her. Yes its a very long time on the big 3 but only a year on Amikacin inhaled, no I haven't had infused at all. My cavities did close on their own but they left a small scar, which I guess would also happen with surgery. I hope yours take alot less time, and hope you are on daily! The big three and Amikacin is a good combination.

Tue, Sep 3 10:28pm · In shock after MAC diagnosis in MAC & Bronchiectasis

@vetnyregr I had 3 cavities in my lungs,they closed over after time on the big 3 and inhaled Amikacin. The big 3 are very restrictive, I have been on them around 5 years, I am about to go off in a few months, yay.

Sat, Aug 31 9:56pm · Statins and MAC medication in MAC & Bronchiectasis

Hi @tinasims My triglycerides went up quite high but they said to carry on as the pills were worth it. Bit of a worry though.


Thanks @anniepie, it is usually a very busy site, Im sure everyone will return soon.

Fri, Aug 23 9:24pm · Starting Arikayce - nervous in MAC & Bronchiectasis

@beatitnow Unfortunatly I have been on the big 3 3x week and daily for around 5 years now, yes side effects, mainly tiredness and reflux. I am going off the big 3 in a few months and am looking forward to it as far as side effects but also a bit scared the bugs could return. I did have food sensitivities for a while but not now, never sure if its menopause, MAC or the meds. I hope they can get you sorted soon with your nasty side effects soon. The only advice I can give is eat well and exercise as much as you can.Take care and let us know how you are doing. Heather

Fri, Aug 23 5:12pm · Starting Arikayce - nervous in MAC & Bronchiectasis

@hydrang3a I was on Arikayce for a year. For me its tricky as I changed to daily meds the same time as I changed to Arikayce so I am not sure which took out my cavities, I feel it was the Arikayce as I was on 3 x week meds for 3years before going to daily with no success at all. But after a year of daily and Arikayce I was clear of MAC. Take care Heather