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1 hour ago · Negative sputum results without treatment in MAC & Bronchiectasis

@jkiemen I was in the same situation, I was changed to daily big 3 from 3x a week and put on Amikacin inhaled and it worked to get a clear sputum and bronch result.

1 day ago · Negative sputum results without treatment in MAC & Bronchiectasis

@deborahwolf Thank you so much for that information. There is hope in our future, yay.

Wed, May 15 5:15pm · Negative sputum results without treatment in MAC & Bronchiectasis

@pfists Thanks for that info, fingers crossed!

Wed, May 8 10:29pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi @sounder27 I only had loss of voice for a few days at the beginning, so I stopped for a few days, sucked Strepfen, inhaled last thing at night. I think my throat would get a bit funny occasionally but not bad at all. I took it with the big 3. It helped reduce my MAC.

Wed, May 8 6:16pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@sounder27 Hi, I was in the trial for Arakarice for a year and it was great , It really knocked my MAC back, only side effect was loss of voice which was sorted with Strepfen loengers , rinsing mouth after inhalation and inhaling just before bed so I diddnt talk after till morning. All the best Heather

Sat, May 4 7:35pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks @anniepie Its so frustrating when they do not trial on NTM, this could be great for us.

Fri, May 3 4:46pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@pfists Fingers crossed all right, heres hoping, just wish it diddnt take so long.

Thu, Apr 25 5:07pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@pfists Hiya, they are usually pretty good at replying, hope we here from them soon. I think they had a trial at the beginning of the year so would be good to hear about that.