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1 day ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker, we all have those times Terri. The not with it times. You got on to it quick .

4 days ago · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@macjane Yes I have, I should still be on it but had to stop taking it. It was making me a bit off balance walking and I was driving to the left at times, not good. One night we had an earthquake and I could barely crawl to the door to get out, it really knocked me out but was great for anxiety and memory.

5 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@sueinmn I can relate to you so well, I would forget to eat too, I would find my dinner in the microwave the next day and wouldnt have known I diddnt eat it, no apetite at all, no memory about anything,diddnt want to go out, time would disappear(3 weeks would seem like a few days) got down to 103lb and diddnt look in the mirror until one day I saw myself get out the bath and freaked out. It was anxiety and lots of us on here have had it over MAC. I got some meds and some high cal drinks from the dr which helped even though I still had bad MAC but put the weight back on, dont know if this is you or not but if so it may not be the MAC or meds. (hope I havnt told you this before) Take care Heather

6 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@yaggi01 Yes for me I think it worked, with very little side effects. Take care

6 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@yaggi01 I had exactly the same as you, on the big 3, 2 years and infection still there, bugs not immune to big 3, I then went on Amakacin and became bug free, went offAmakacin but stayed on big 3 and last scan nodules returned. I am thinking Amakacin inhaled worked for me but time will tell. Good luck.

Sun, Jan 13 6:06pm · Rifampin giving my mom mouth sores in MAC & Bronchiectasis

@oglewis Hiya When I went on the big 3 I had all sorts of side effects including reflux and dissyness (sorry some of my keyboard keys have stopped working) for the reflux (which was really bad)I was put on omeprasole, they kept upping the dose until it worked. I also find with reflux the more you concentrate on it the worse it gets. The dissiness just seemed to go, I was anxious and my breathing was very shallow so maby try some deep breathing to help with this. I hope you can get this sorted out. Heather