About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (574)

18 hours ago · travel nebulizer in MAC & Bronchiectasis

@windwalker the pari eflow does it in 10 minuites and is travel compatible, internal battery and plug in, with no tubes, its fantastic. It is a little expensive but so worth it.

Wed, Jan 8 9:35pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks @nannette thank you so much for that info, its always nice to see what affects others, sometimes I think everything causes it and other times nothing. Went to Singapore and it went completely while I was there, maby we should all move to Singapore, its a great place. I really want to get off the PPI drugs.

Wed, Jan 8 2:44pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi @unicorn Could you please tell us what diet changes you made to get rid of GERD. I have been on pills for it for 5 years and having trouble getting off them. Thanks Heather

Tue, Jan 7 3:19pm · travel nebulizer in MAC & Bronchiectasis

@tinaesims I contacted an industrial chemist and got a high % vinegar and just dilute it down to 10% for shower heads etc.

Tue, Jan 7 3:15pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@alleycatkate It is all so tricky, I use floradix or floravital, which is a liquid iron made from fruit and veg, its great and tastes ok also.

Mon, Jan 6 3:30pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@flib It is very complicated but basically Mycobacterium requires iron for normal growth, we dont want them growing to fast or at all. Hope this helps. Heather

Sat, Jan 4 3:02pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you so much @anniepie, that is great info(and very interesting and makes a lot of sense), I will start taking iron again. This MAC is so complicated. Love this site!!!!!!!!

Wed, Jan 1 5:20pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi all. I was wondering if anybody had info on Iron, I read somewhere not to take iron supplements, are we not meant to eat iron foods either. I am vegetarian and often need iron supplements. Not sure what to do. Thanks Heather