Hello Kate and all,
Since you asked us all to reply, I’m updating you on my status. I was diagnosed with MAC a couple years ago after undergoing a bronchoscopy . About three years ago, while undergoing an unrelated test for my heart, it was discovered that I had lung nodules.
Because I did not have symptoms at that time, my Dr. just did CT scans every 6 months to keep an eye on the nodules. However, I wasn’t comfortable not knowing what my actual diagnosis was so we did the Bronchoscopy, which confirmed the MAC. That’s when I found
this website which led me to Dr. Aksamit. I went to see him about a year ago and he agreed with my Dr. that we would not start treating the MAC at this point because I’m still relatively symptom free. I will see Dr. Aksamit again in December. Thank you all
for posting your experiences with this disease. It’s helpful. I pray that we will continue to find out more about good treatment for this disease. Rosie from Minnesota