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Nov 11, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hello Kate and all,
Since you asked us all to reply, I’m updating you on my status. I was diagnosed with MAC a couple years ago after undergoing a bronchoscopy . About three years ago, while undergoing an unrelated test for my heart, it was discovered that I had lung nodules.
Because I did not have symptoms at that time, my Dr. just did CT scans every 6 months to keep an eye on the nodules. However, I wasn’t comfortable not knowing what my actual diagnosis was so we did the Bronchoscopy, which confirmed the MAC. That’s when I found
this website which led me to Dr. Aksamit. I went to see him about a year ago and he agreed with my Dr. that we would not start treating the MAC at this point because I’m still relatively symptom free. I will see Dr. Aksamit again in December. Thank you all
for posting your experiences with this disease. It’s helpful. I pray that we will continue to find out more about good treatment for this disease.  Rosie from Minnesota

Mar 4, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hello, I am new to this site. I was diagnosed with MAI about a year ago after a bronchoscopy to figure out the nodular growths in my lungs. At that time I did not have symptoms but the nodules in my lungs tested positive. My pulmonary Dr. recommended not to start any antibiotic treatment since I was symptom free, but to continue to monitor it with bi-annual CT chest scans. Since my last appointment, I have started to have bronchial symptoms. I’m due for my next CT scan but wanted to get a second opinion. I was excited to hear about Dr. Timothy Aksamit at Mayo so I’m trying to get an appointment with him; however, they said he doesn’t have any openings as far out as May (and they don’t schedule out any farther). They suggested I see the Nurse Practictioner, who is overseen by Dr. Aksamit. I am more inclined to wait for him to directly be my Dr. since he is the one recommended (and I live 90 minutes away from Mayo). I don’t mind driving if I can see him directly. If I can’t get in with him, does anyone know of one who specializes in MAI in the Twin Cities? Philomena