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I have the same problems with car seats. I avoid sitting in cars as much as I can, resulting in not going to see my family anymore…We’re looking for another car now. The best options chairwise seem to be a Volkswagen Caddy and a Opel Meriva. What car did you find?
Hi Sharon (and Lillgrizz),
I recognize your problems with hip pain, kneeproblems and lower back pain (and degenerations of discs). I’m 48 (and from the Netherlands) and having the same problems. I have two severe curves (S) of around 54 degrees. The pain and hypermobilty became so worse, that I also went back to the orthopedic doctor a few times the last couple of years. He said, that he wouldn’t do a surgery until It got so worse that I would fall to the side when walking. He’d just rather not operate, because there’s no guarantee that I will be painfree afterwards. Pain is not an argument for operating, he said. Bang!
I was diagnosed with a ‘snapping hip’, ‘trochantor major’ problems and the only thing he could do was sent me to a rehab center. Last year I started to wear a kneebrace, a pelvis brace etc. But the pain on the front side of my right hip and also the right knee stayed.
Luckily, I read someting about Schroth therapy in late 2016. It’s a German form of Scoliosis therapy invented by a Scoliosis patient in the fifties, Katharina Schroth. It appeared that in Holland there are a handfull of Schroth-therapists, one of them in a city 30 minutes from where I live. January 2017 I started therapy. Although it’s though and difficult in the beginning, I start to see benefits of it now. It normaly takes a year, or 1,5 before you see result, but these are in general really good. For childeren and adults. It can prevent youngsters havinf to wear a brace. The goal is to prevent the curves from getting bigger, sometimes even smaller and prevent pain. It’s a so called 3D therapy. You learn to derotate your Scoliosis in all directions.
This therapist also advised me to see a German doctor (from the MVZ Bad Sobernheim), and he prescribed me the Swiss Cubin brace to release pain and stretch the spine. Last week I went to Germany to get it made (you can also Google ‘modifiziertes rahmenstutzkorset’. I only have to wear it when I want to, for support. The therapy has to do the rest.
For young people there is a really good alternative to the tradional Milwakee brace called the ‘Cheneau brace’. This brace is based om the ideas of Schroth therapy. And must be combined. The results are much better than with the tradional brace. On a scan, my curves seem to have lessened since I started Schroth Therapy. I feel that i’m getting stronger and now I know how to correct my back.
I also discovered a doctor in my area specialised in neuro muscular therapy (sometimes called prolotherapy). I got series of thin needle injections with sugar solution as well as dry needling. After the last session, a huge subluxation happened in the area of my right shoulder and upper ribs. That worked! I’ve been able to walk again (long!) without pain since then! The constant hip pain is almost gone and the lower back pain due to a degenerated disc is getting better. I will continue this therapy.
I would encourage you to dig into this kind of options!
I could reply to the stories above that I wish my doctors told me 15 years earlier that a specialized scoliosis training program exits, to correct your curves and posture. It’s called ‘Schroth therapy, after a German scoliosis patient Kathatrina Schroth who worked it out. I’m from Europe and this therapy is teached in a few European countries to fysiotherapists who want to specialize in woking with young and adult scoliosis patients. In the beginning, it’s quite a heavy work out, using bars, a therapy ball to sit on, strips and your breath and muscles. But, it works. My goal is to stop further progression and to diminish pain and rib and pelvical dislocations. I follow therapy in a one to one setting in the Netherlands, but I know many patients go for a intern training some weeks to Germany and then keep on training at home : https://www.asklepios.com/bad-sobernheim/patienten/anmeldung/international-patients/
Jul 11, 2017 · Video Q&A about Chest Wall Deformities in Children in About Kids & Teens
I’m doing a scoliosis training (3D) therapy now, called ‘Schroth therapy’ (German origin) and although it isn’t easy and it causes quite a lot of muscle pain, my deformaty gets less, my posture more normal and I have less ribb pain. I think you can find information about it on YouTube and websites. You have to correct yourself and make muscles that are too weak stronger and make corrections trough directed breathing. It helps childeren as well as adult patients (goal is to stop progression and improve quality of life) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3180431/