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Apr 10, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

This is Cathy from Lake Mary Florida. I was on three antibiotics per week for two years minus three months when my doctor retired. I'm seeing one of his partners who is now telling me I need another bronchoscopy to see if I still have Mac with Ct showing I now have the budding of s tree in the other line which means it has gotten worse. I feel I need to increase the mess by going daily or increase mg something to keep it at bay.he told me he would call in a refill for three more months then take me off. I've been off for six weeks I told hi I would just stay off now instead of starting back up and stopping again. I'm looking for a new infectious disease dr that might have a little knowledge of this infection. Do you know of anyone near Seminole county, Florida?

Sep 4, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I too have been diagnosed with Mac. I’ve been on meds for six months. I had a CT scan few weeks ago. Dr really didn’t give me a straight answer if the same or worse. He was more concerned with my PFT test stating my chest was a lot tighter which I haven’t noticed. How soon can you tell if meds are working? Do you see an infectious dr in addition to a pulmonary dr?
I’m wanting to find someone who specializes in Mac. I live in Lake Mary Fl

Aug 20, 2016 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I take nexium 40 mg every morning. I wait two hours then take rafampin on empty stomach on Tuesday Thursday and Saturday. I take my other two meds on mon we’d and Friday evening around 7pm so side effects never interrupt my day. I sometimes get tingling in hands and feet and awful taste in mouth but I figure I’m n bed not ruining my day only last few minutes then wake up to a great day

Aug 3, 2016 · I was diagnosed with MAC in May 2015. in MAC & Bronchiectasis

I take rifampin in Tuesday Thursday and Saturday mornings before breakfast.
I take the others Ted end of day Monday Wednesday and Friday’s. Have few side effects at bedtime which have subsided. I have great days everyday. Been on meds six months
Having CT scan today

Aug 3, 2016 · I was diagnosed with MAC in May 2015. in MAC & Bronchiectasis

I’ve been on meds for six months. I take rifampin in tues thurs and Saturday morning before breakfast and the others on non we’d Friday close to bed time after meal or snack so side effects if any are during the night doesn’t ruin my day