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Sun, Mar 10 11:13pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Have you tried a Neil Med sinus rinse bottle with the saline solution (kit comes in a box at any drug store) Natural, Easy, inexpensive and with regular use works better for nasal drip and even sinus infections than ANY drug I’ve ever been on-(had chronic sinusitis ) prescribed to me at National Jewish Health in Denver. Hint – if you warm it just a tad it is not at all uncomfortable. Also ask your Dr about using an Aerobika with your nebulizer – like getting a 2 for one deal. Works wonders for helping to clear lungs when you have bronchiectasis.

Sun, Mar 10 11:04pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Terri, I admire your tenacity and bravery. I’m trying to work up the courage to make a move – thank you for the encouragement

Sun, Mar 10 9:04pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

The way I understand it –
it is one of the types of bacteria commonly found in patients with MAC and those with Bronchiectasis. It was the last bacteria for me to get rid of – took a long time and it takes a lot of work to keep it gone -which is why lung hygiene/ airway clearance is a MUST ( once every day and twice daily when you feel something coming on) A routine that we must accept as a daily regimen. PLUS what some of the other posters have said- exercise, adequate sleep, good nutrition and positive attitude. I’ve incorporated my bible study in with my Pulmonary therapy / nebulizer treatments and that has been a blessing to me. Best wishes and be stubborn and persistent about taking care of yourself.

Sun, Mar 10 4:06pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I do agree with all the above, but feel I must add a bit to this discussion. I also live in the central Florida area ( not far from Tampa) I have bronchiectasis, asthma, several other health issues but still cleared from MAC since 2016- thankfully. Just for the record – there is absolutely no question that living in a hot, humid environment puts me at a much greater risk for exacerbations. It is a constant struggle to stay healthy here. I go to Colorado and North Georgia as often as is possible. I am careful wherever I am because it is true that you can get MAC anywhere, but it is easier to build up a resistance and maintain a stronger “defense” in better climates than here. I wish it wasn’t like that – all my children live closer to my home in Florida. I am strongly contemplating a move. I am trapped indoors with dehumidifiers, air cleaning devices, double the amount of airway clearance and pulmonary therapy, etc., etc. Just sayin’ … Don’t rule moving out as a viable consideration

Wed, Feb 20 5:58am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

If it isn’ too expensive, I would
personally be excited to give it a try.
In fact, I wish I could! If you do get it, please let us know what you think.

Mar 12, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I’ve tried a gel called simply thick and a powder mix ( can’t remember brand name)

Mar 7, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you! I will check into that.i do think the probiotics really are legit.