About 4 years ago I got a excruciating headache. I’ve never had headaches before. I would only get a headache once every couple years. It was so bad after 2 days I went to the emergency room because it was like no headache ever. I thought my eyes were going to pop out of my head. They originally diagnosed me with a aneurism. Then they did more tests and said it was a Cavernous Malformation. I was in the hospital for 14 days at U of M in Ann Arbor, MI. My Cavernoma is in the left frontal lobe. It was only 3mm when this happened. It is now 6mm. They have sent me to Neurosurgeons, Neurologists and now pain management. The Neurosurgeon said they don’t want to do surgery do to it being so deep in my brain. Neurology tried every drug imaginable and nothing worked. They put me on Oxicodone which doesn’t take the pain away but makes it manageable. I have done nerve blocks which is 6ahots in my head to see if that work but it didn’t. They have tried Keppra, lamitctal, god there is too many to count or remember and nothing seemed to work. Now my pain management went Opiate free and they want to put me in some drug called Suboxone but I heard it’s a ugly drug and don’t even want to try it. Now I am in major pain daily with no relief. I take Norco but it seems to make my stomach feel yucky. Since you can’t take anything like Asperin, Alieve, Motrin or any NSAID it makes it hard to try to find something to take. I have also had anxiet due to this because you feel like your just going to hemerage it hurts so bad. A lot of people have seizures due to Cavernomas but I don’t have them. Hang in there I heard about a doctor in Ann Arbor that has found a new trial drug to help the pain. When I locate his name I will share. If you hear of anything please do the same. Hopefully people like us will find relief one day.