Thank you for your post. I ‘am or was a healthy 72 year old until 5 months ago when out of the blue this hit. As most people, I have never heard of this. I had all the TA markers; elevated sed. rate, blood work all over the place, anemic, jaw pain, felt like I had the flu, terrible head pain and the list just goes on and on. Once on the prednisone the pain subsided and the blood markers were slowly returning to normal….sort of. I started at 40 mg. of pred. and now 5 months later I am on 12 mg….. they are trying to get me off the “devils drug”. Every time they reduce the pred. the inflammation markers start to go back up and they increase the pred. to compensate for the elevation in the sed. rate. I have horrible side effects to the pred. My blood sugar, which used to be normal is out of whack, I shake all the time, my nerves feel like they are sitting right on top of my skin, I am in a fog, memory is horrible and I look like I have aged 20 years. I have not gained weight, lost about 12 lbs., probably from burning so many calories a day from the constant shaking.
Besides the pred. I take nothing but vitamins. I am well aware of the damage to the bones so I just keep taking more calcium, Vit D, and magnesium. I eat well, but the exercising (used to play a lot of tennis) has gone out the window as I am so unstable on my feet.
Will this ever end? Everything I have read says this will take up to 2 years to get rid of, and the rummy agrees.