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Apr 4, 2018 · Treatment?? in MAC & Bronchiectasis

Thank you for your kind words Gina. Life is not the same, never will be, but i have 2 other children, although grown, they need me. I have a grandson and he is the reason I get up everyday. Thanks too, for your answer regarding lungs . Some days I honestly don't remember I have MAC, or bronchiectasis. I do have an aerobika aslo, but I have an easier time clearing my lungs just by laying on my back. I get so much out that way, then I am finished until the next day. I sit, and worry all day, and my mind went to my lungs. I know, I had surgery immediately when they found Kansasii…I was very sick. But, I don't feel like that at all, and I am happy I don't, but wondered too if I just had a rotten doctor. I had him 14 years, and he has done nothing, but say go home and live your life. So, as I am also allergic to th the one class of drugs that work on MAC, I worry about that too. I am seeing someone for my emotional health. Not doing very well, and it has started taking toll on health. I appreciate your answering. Thank you, Cathln.

Apr 4, 2018 · Treatment?? in MAC & Bronchiectasis

Thank you for your kindness. Yes, I am having a hard time, and I sit and think, so i wondered about my lungs and lack of treatment. i know how taxing it is on your body being on all those meds. I had 2 NTMs 12 years ago. Had surgery and 18 months of oral antibiotics and 9 months of IV, 2 times a day, 3 days a week. I am hoping for a new ct scan next visit. Haven't had one in 2 years. Thank you for your prayers. They work, and I need them. Thanks, Cathln

Apr 4, 2018 · Treatment?? in MAC & Bronchiectasis

Thank you for your kind words. I do have an ID doctor and a new Pulmonary doctor. I haven't bleed in a while, but when i do it is a lot. My old doctor said unless its over a cup, don't call. I couldn't handle that. My new one puts me on antibiotic for infection. Has worked really well. I appreciate your answering my post. i do know I must find a way to eat healthier. It's been so very hard, but I have to try harder. Thank you, Cathln

Apr 4, 2018 · Treatment?? in MAC & Bronchiectasis

Thank you Irene, Good nutrition is the hardest part. I was doing well. I have had this 3rd NTM since at least 2012. I have lost a lot of weight and been sick with different illnesses since losing my son. That got me wondering why I am not being treated. I just sit and worry about it. I may look in to meditation. I have heard this before I'm sure i could learn to do it. Thank you for your prayers. I need them. Cathleen.

Apr 4, 2018 · Treatment?? in MAC & Bronchiectasis

Thank you Gayle, I do see someone for grief, and I am on meds right now for anxiety. I'm sorry for the loss of your son also. it is a life long journey no one wants to travel. Thank you for your kindness. Cathleen

Apr 3, 2018 · Treatment?? in MAC & Bronchiectasis

Hi, I have had MAC for at least 5 years..I also have bronchiectasis for years.. My bronchial tubes bleed on occasion and I am put on antibiotics for infection. Does anyone here have MAC, and has not had any treatment? I am not sick. I have not had ct scan for 2 years. I switched doctors, and feel like I am not any better off than I was with the old doctor. I have lost weight, and I am tired, but my son passed away suddenly, and I can't really cope with the loss. I have had 2 other mycrobacterium, abscessus, and kansasii, so I do now how sick I can get. I had part of right lung removed, and 18 months therapy. I always thought I was so lucky that I didn't have MAC..I saw plenty of women at National Jewish with it. Is treatment always started when MAC is found? My old doctor said it is like "moss on a tree" if it isn't hurting the tree, leave it alone. That is one reason, among many that I left. Sorry this is long. Thanks in advance for taking time and reading it. Cathln.