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Oct 27, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Dear Cynthia, thank you so much for your invalueable contribution about how to live with HCM, I always follow and read your sharing experience and knowledge about it.

Oct 27, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi, I am Wandy Karnady from Jakarta, Indonesia, since October 2012, I had been diagnosed with Septal Hypertrophy Cardiomyopathy (Septal HCM), with LVOT gradien 68 mmHg.
I contacted Mayo Clinic Rochester in December 2015, was very lucky been recommended by Colleen Young, the Connect Director of Mayo Clinic, to join Mayo Clinic Connect until now. 
Until today I have just been taking 50 mg Tenormin (Beta-Blocker) once a day, while doing 1 hour walking exercise every day. So far my condition is improving, recently LVOT gradien is around 50.
Thank you so much to Colleen for inviting me to follow the new HCM group on Connect, as the information exchanged by the participant in this group been really very useful for me and all the other HCM ers. 

Best Regards,
Wandy Karnady

Jan 10, 2016 · Want to have therapy in Mayo clinic for my Hypertrophic Cardiomyopathy in Hypertrophic Cardiomyopathy (HCM)

Thank you very much Ms Lynnkay1956 for your reply.
When did you have the treatments? Are you feeling better now ?

Jan 8, 2016 · Want to have therapy in Mayo clinic for my Hypertrophic Cardiomyopathy in Hypertrophic Cardiomyopathy (HCM)

Thank you so much for your info Ms Lynnkay 1956, however can you further describe what health procedures you have had in Mayo for $64,660 ?
Highly appreciate your response.

Dec 31, 2015 · Want to have therapy in Mayo clinic for my Hypertrophic Cardiomyopathy in Hypertrophic Cardiomyopathy (HCM)

No, I have not made any contact yet, because my big concern is how much the estimated cost of the treatment will be, since I will have to pay it from my own pocket, as I am not US citizen and have no health insurance coverage as well.
I am very sure that Mayo Clinic is very capable of handling my health problems, but I want to be sure first that I can afford to the service.

Dec 29, 2015 · Want to have therapy in Mayo clinic for my Hypertrophic Cardiomyopathy in Hypertrophic Cardiomyopathy (HCM)

Hi Colleen,
Thank you so much for your response.
Unfortunately, until todate I have not received any reply from Mayo Clinic.
Can you do me a favor by follwing up with the person in charge at Mayo ?

Best Regards,
wandikarnadi

Dec 13, 2015 · Want to have therapy in Mayo clinic for my Hypertrophic Cardiomyopathy in Hypertrophic Cardiomyopathy (HCM)

HI LI, how are you today ? I hope you have been very well right now. I have got the same HCM problem with you and am now considering to have therapy at Mayo Clinic in Rochester as well.
Can you help me by indicating how much money that you had paid to the clinic for your HCM therapy as I got the same condition as you did ( non US citizen and no Health Insurance, paid by ourself}
Highly appreciate your quick response