We had our appt. last Thursday (12/31). The sleeping test showed everything was “normal” so they are still diagnosing him as Kleine Levin Syndrome. For about a week he was up for 9-11 hours a day, but the pas week he’s been up less than 5 hours for 2 days and the other days are all less than 9 waking hours.
The doctor has prescribed him with some medication to try and help force him awake, but we are waiting for the insurance company to approve it, so we have not been able to try it, yet.
The doctor (pulmonologist) said that if the medicine does not help, he will refer us to a pediatric neurologist.