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Jan 5, 2016 · Kleine Levin syndrome in About Kids & Teens

We had our appt. last Thursday (12/31). The sleeping test showed everything was “normal” so they are still diagnosing him as Kleine Levin Syndrome. For about a week he was up for 9-11 hours a day, but the pas week he’s been up less than 5 hours for 2 days and the other days are all less than 9 waking hours.

The doctor has prescribed him with some medication to try and help force him awake, but we are waiting for the insurance company to approve it, so we have not been able to try it, yet.

The doctor (pulmonologist) said that if the medicine does not help, he will refer us to a pediatric neurologist.

Dec 30, 2015 · Kleine Levin syndrome in About Kids & Teens

Our appointment is tomorrow (12/31/15). We’re supposed to learn the results of the sleep and nap test then.

Dec 22, 2015 · Kleine Levin syndrome in About Kids & Teens

No, we have not had multiple diagnoses. So far we’ve been told there is no treatment. My son just had a sleep and nap test done to get further information. Awaiting results and possible options.

Nov 30, 2015 · Kleine Levin syndrome in About Kids & Teens

Thank you for your response. I will definitely read up on the other sleep disorders you mentioned.

Nov 30, 2015 · Kleine Levin syndrome in About Kids & Teens

My son is 16 and was just diagnosed with Kleine Levin Syndrome within the past 2 weeks. How has your son been doing in the past 4 years? How long have his episodes lasted? Does he still have them? My son has had 2 episodes. The first lasted 5 weeks, the 2nd lasted 10 days. He is still sleeping over 14 hours a day, but is much more functional than he was during his episodes in which he was sleeping over 22 hours a day.