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Posts (22)

Apr 22, 2017 · Welcome to the NETs Group! Come say hi. in Neuroendocrine Tumors (NETs)

I have just been treating with sandostain shots once a month….the oncologist checks through mri to see how i am doing….i have had a reccomendation for University of Michigan. They say that there is a specialist there….if someone has their name i’d appreciate it

Feb 15, 2017 · NETs/Carcinoid Cancer on National Television! in Neuroendocrine Tumors (NETs)

thanks for letting us know i am looking forward to seeing the program

May 10, 2016 · Carcinoid cancer in Neuroendocrine Tumors (NETs)

thank-you i have been looking for someone that specializes in carcinoid tumors in the michigan area because i live in michigan…i will check out del valle from U of M. thank-you so much!!!


May 10, 2016 · Carcinoid cancer in Neuroendocrine Tumors (NETs)

Who are the doctors that you have used???

Jan 25, 2016 · Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors? in Neuroendocrine Tumors (NETs)

So far no side effects…i do not know how long I can be on sandostatin. The claim from the oncologist is that patients have been in it for years…although I do not know how true that is.