Badges (1)

About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (2)

Nov 19, 2015 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi Colleen, Many thanks for your kind words, Nope i was discharged from hospital almost 5 weeks ago with prednisolone starting at 40mg and am now on 15mg a day in 3 weeks time will be down to zero, oxycodone 20mg twice a day 8 tramadol and 8 paracetamol a day plus oxycodone liquid when i get bad pain, on the liquid diet still fortijuice and fortisip and yoghurts and energy drink, still feeling sick all the time with occassional vomiting and still getting pain in the bowels and stomach. havent seen a gastro or nutritionist so no hope there basically discharged and get on with it i guess, I am seeing a GP on friday to let him know im still in pain and not eating as well as fatigued all the time , I was hoping to maybe get some guidence from people on here as to what they have been told and advice for health and management of the condition, also has anyody had any luck claiming benefits from the state as i am unable to work at recent and have lost about $5000 over the last few months not getting paid for being off work which doesnt help the whole situation and adds to the stress .

many thanks take care bye for now Peter

Nov 17, 2015 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi all 44 old male living in Weymouth Dorset united kindgom was fairly fit last year running upto 25 miles a week in the gym and all was going fairly well, feb/march this year had debilitating abdominal pains lack of energy and not wantig food feeling sick was admited to hospital for a week got out had loads of blood tests scans follow ups nothing found local gp’s basically didn’t know what to do and dismissed me which made me feel awful, the pain lasted for 6 weeks or so and then came back abbout 17 weeks ago, worse this time though to the point i was hospitalised for 13 days pcb pain fentinol relief, oramorph, tramadol, oycodone loads of pain killers and laxatives laparoscopy perfomed xrays bloods and then a CT which showed wait for it Mesenteric Panniculitis with a secondary diagnosis of diverticulitis left hospital after 13 days on steriods for 8 weeks reducing 5mg per week 8 tramadol a day 8 paracetamol oxycodone 20g twice a day and liquid to top up every 4 hours as well as laxatives, I havent eaten a proper meal in almost 5 months the smell of food makes me want to vomit and am sick if i do eat also get severe pain in the stomach and bowels have been on fortijuice and fortisip liquid drinks for calories and intake as well as yoghurts and energy drinks, have been off of work for 8 weeks and not getting paid, not sure how long the pain is gonna last for, my gastro specialist didnt see me once when i was in hospital.
not sure where to go from here really have been told it’s not cureable and could come and go as it likes,as well as IBS and reflux which i have had for about 12 years i have had testicular cancer 7 years ago and a bladder and prostrate op which has left me partially incontinent and now more so as i have a catheter in as i couldn’t pee when i was in so much pain, not sure when the catheter is due to come out. bowels not good because of the liquid diet and have frequent accidents and this week cotracted a urine infection on top of everything else.

just wanted to say hi to everyone and if anyone has any ideas or comments or questions please feel free to contact me

follow up apointment booked for the 22nd december gastro doctor but any help in the meantime would be very much appreciated as i could do with some answers so i can try and get this under control

kind regards

peter