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21 hours ago · Glioblastoma Multiforme and Cognitive Loss in Brain Tumor

Hi @nursnis
My mother lost her battle with GBM. She Was diagnosed stage 4. Of the time they diagnosed her she had over 100 fingers that wrapped around her brain and her brain and two of the fingers develop tumors at the end of them. Surgery was not an option for her and we chose to do radiation for 30 days straight and a round of chemo in hopes to slow down the disease process. Over 3 months time she declined by the 3rd month she had no core strength to sit up on her own. Her headaches were getting worse she became more and more confused. We decided it was time to get help from hospice. But her oncologist refused to order hospice. I fired him and went with the hospice medical director. From my medical background and my personal experience, the end process of a GBM battle is painful for the patient and the families. I’m am sorry there is no easy way to tell anyone how the end will be as it is different for each individual. For my mom within 24 hrs she went from talking and eating to completely unresponsive other than moaning in pain. Within those 24 hours the cancer created holes externally and she went to sleep surrounded by her family and love she went to her forever home.

Praying for peace as you all endure this journey.
Dawn

21 hours ago · Glioblastoma Grade 4 in Brain Tumor

Hello @bjh369
I am so sorry you have to make this journey! But there is some hope with new trials and studies they are have some success. My mother passed away several years ago from Glioblastoma (GBM) and treatments were so limited because it was not discovered until very late stage 4. But I have a patient we are currently seeing with stage 4 GBM. 60% of the tumor was removed and she has completed her first round of temozolomide and 30 straight days of radiation and a treatment of TTFields.

In 2015, the Food and Drug Administration (FDA) approved a portable device called Optune for the treatment of glioblastoma, to be used in combination with temozolomide.

The device consists of transducer arrays that are placed on the patient's shaved scalp, and these deliver low-intensity, alternating electric fields called TTFields.
We are seeing encouraging results in this early phase. I would encourage at least discussing the option with your oncologist.

Praying for you & your medical team.
Dawn

2 days ago · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I am so sorry your are going through this. Headaches are terrible!!! With my own experience with my crazy blood pressures I know how unpredictable and painful they can be for me. I know my body is use to my blood pressure being 210/118 that’s have sensation that I feel terrible when it’s normal. My body is not use to working st a “normal pace. Good to see your number is getting close to the acceptable ranges.

Prayers
Dawn

2 days ago · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

@dotie
Sadly every medication comes with the risk of side effects. I have had numerous reactions to medications and my physicians and I have discuss the side effects and we decide if the risk is worth the side effects which can be frustrating. The medication I have a hard time taking is Procardia ER because it results in headaches, flushness and overall feel horrible but right now it’s the only one that effectively keeps my heart rate regulated. Without it my heart rate runs 150’s but now it runs 90’s which is still high but I can tolerate the side effects on the lower dose. I encourage you to keep talking with you doctor and trying to find the right medication or the right dose that you can tolerate. I pray you find the answer soon.

How’s it going with the olmesartan?

2 days ago · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi Dotie @dotie
I have one blood pressure medication that caused me headaches so my md lowered the dose. Have you discussed the headaches with your doctor? Curious which medication is effecting you this way?

3 days ago · Muscle pain in Bones, Joints & Muscles

@lioness
It was pretty rare in my neck of the woods so my docs tried a lot of different treatments. My physical therapist tried to tape my breasts which I can look back on now and get a good laugh but it wasn’t to funny at the time. The weight of my breasts just made the tape ripped my skin. I bled for a long time. Uhh
Then we tried a brace to see if we could secure my breasts. I ended up going to Mayo Clinic when the brace didn’t help. We all got a good laugh at the brace. The problem for a lot of women is when we lay down our breasts separate so it causes the manubrium joint to move which causes the chest wall pain. Which reminds me @klaubi have you tried hugging a pillow?

Dawn

3 days ago · Muscle pain in Bones, Joints & Muscles

@lioness
That does not sound like any fun!! I was in a car accident and sustained a paired over fracture through my sternal manubrium joint. The doctors said “sternal fractures always heal” well 3 years of horrible pain a swelling, every time I would breath the joint would moved because the lungs would fill and expand the lungs which cause the chest to rise and fall which inturn would cause the fracture to move causing friction and sheering. I developed the costochondral chondritis. As a result I developed a landslide of health issues, chronic pain, insomnia, chronic pneumonia, depression, anxiety just to name a few. I tried a ton of treatments. Finally surgical intervention worked to completely resolve it. Removed my My sternum from my 2, 3, 4, 5th ribs & over 100 bone fragments out of my chest and both breasts. 3 surgeries later & No issues at all today!!

Thankful
Dawn