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Caregivers, Cancer, Chronic pain, Eye disorders, Neurology (brain and nervous system), Palliative and end-of-life care

Posts (776)

1 hour ago · Glioblastoma Multiforme and Cognitive Loss in Brain Tumor

Hi @tanyabaust As a longtime caregiver I can attest to those times of frustration and arguments. They can arise at anytime in our lives, but especially when one is chronically ill or being a caregiver. It happened to me many times. None of us can be cheerful all the time.

What do you worry about easing for uour husband in the future?

2 hours ago · Caregiving: I’m frustrated and exhausted. in Caregivers

Hi @kimspr3 As a genealogist and our family historian I understand your concerns. I might make a couple of suggestions for your consideration. There might be a local or county historical society interested in the family materials. Or maybe the branch of the military museum of your uncle.

Also, I know from my wife’s experience arrangements for medical body donation needs to be arranged in advance due to several scientific-based issues. Just a heads up in case it helps.

You mentioned your household goods. Maybe donate them to a charity via your will?

I am doing well and appreciate your kind wishes!

1 day ago · Glioblastoma Multiforme and Cognitive Loss in Brain Tumor

Hi @tanyabaust Welcome to Mayo Connect. I am sorry to read of your difficult healthcare journey. I sincerely respect your ability to maintain that critical level of Positive Mental Attitude!

That PMA can add so much quality to the days! Congrats!

That is so very cool you continue to visit friends! Chronic illness can be so isolating that friendships, near, far, and e-friends can be more valuable than gold!

Please also extend my hello to your husband!

I look forward to your next post!

Strength, Courage, and Peace

1 day ago · Caregiving: I’m frustrated and exhausted. in Caregivers

Good morning @kathymcl Sorry for the delay in responding, but I had to travel out of state for a funeral. My DIL’s Mom died and it was good for me to be there for our grandsons since I am now the last living grandparent. A sobering thought for me.

Now to your point.

One of the most important ‘rules’ my wife and I established was to be each other’s sounding boards. We agreed to talk through each issue we brought up, think about it separately, then talk about them together again — bringing our new questions and thoughts — and then adjust our decision and put it in writing.

We did this for things we did not have in our legal papers of our estate plan, wills, POA, medical directives, etc. that were drafted by our attorney.

The items we worked on were some of the most important of her life. Perhaps not legally, but certainly for peace of mind. It was about the things that actually mattered most to her. Her decisions for care, some donations and gifts she wanted to give while alive, her Celebration of Life — including music, the five places where her ashes were to go, music, eulogists, and even wine.

Let me know more questions.

1 day ago · Caregiving: I’m frustrated and exhausted. in Caregivers

Hi @kimspr3 I was referring to a document my wife wrote explaining those things she wanted done in various circumstances should they happen to occur. She wanted to avoid some of the traumas , , second guessing, and resultant arguing, which had occurred in her family at the times of earlier deaths. Such as ‘ if ‘A’ happens to me, I want the following done.’ If ‘B’ happens, then do this (something different.

She also included giving some highly personal items to specific folks prior to her death as well as all directions for her Celebration of Life.

I can elaborate if you’d like.

6 days ago · Caregiving: I’m frustrated and exhausted. in Caregivers

A great essay, but I have to say this was not left, written, or said by Steve Jobs. But someone put it together and it has some interesting aspects to it for sure.

6 days ago · Caregiving: I’m frustrated and exhausted. in Caregivers

As an amateur genealogist, I, too, wish for those stories to be retold! So many questions I would ask, so many people I would ask about. I have so many vague memories I'd like to have filled out more! The book could be a great idea! I always asked my folks to record some of their stories, but they would always say to me 'what? You think I'm going to die?' So they never did…unfortunately!

Wed, Jul 3 9:18am · Is there a connection between dementia and hearing loss? in Hearing Loss

I am not here to argue, but I do believe it is important to be cautious and careful when stating things as fact here for others.

Only one, very rare form of dementia, Familial Alzheimer's disease (FAD), is genetic. All other forms of dementia have not been proven to be genetic.

Peace and I hope everyone is getting ready for a wonderful 4th of July!