About

First Name
Scott

Health Interests
Caregivers, Cancer, Chronic pain, Eye disorders, Neurology (brain and nervous system), Palliative and end-of-life care

Posts (670)

2 days ago · Talking Frankly about Living with Advanced Cancer in Cancer

Thank you, @lbern I appreciate this information. My neighbor during the summers was just diagnoses with Stage IV Pancreatic Cancer and your link will help me understand at least a bit of the jargon surrounding it.

Thanks again and get ready to welcome Spring this week!

4 days ago · The system NOW?? in Just Want to Talk

With my mom, going to the hairdresser was more of a social event for her than a hair appointment! It stayed that way her entire life! I have to admit, too, I have a favorite barber and go out of my way to get to his shop 🙂

4 days ago · The system NOW?? in Just Want to Talk

Wonderful words to hear @gingerw You must be a terrific 'bonus mom' for sure! Thankfully, kindness seems to never go unrewarded in our lives!

Cheers and keep in touch!

4 days ago · Who will care for us as we age? in Caregivers

Good morning @virginiatc First, I wish you well on your own healthcare journey coming up! I know when the caregiver needs care it can be a challenge! Caregiving is such a house of cards that when the smallest breeze hits it can disrupt the whole thing! It often did for us!

We were lucky in being able to meet my wife's desire for home hospice in her care, but I know there were days it was almost impossible for me and I certainly understand those who cannot make home care work. SO many factors at work! For instance with my daughter-in-law's dad who had dementia, his wife was simply too small to handle a big fellow with his limitations. The physics of it just made it impossible especially since he had the all too common period of combativeness that often accompanies dementia.

Keep in touch and let us know how your reviews go for your surgery! We will all be pulling for you and wishing you the best!

Strength, courage, and peace!

4 days ago · Who will care for us as we age? in Caregivers

Hi @cmael Glad you were able to bring your husband home! That is nice and it sounds like you have quite a lovely spot with lots of land!

My MIL had dementia and I remember that things were always extra difficult, she usually declined a bit, and was often crabby after any change in her surroundings, etc. Any type of confusion or change made her more confused.

My wife wanted home hospice for her care and we were lucky that we could do that for her, but I know many where their patient's situation made that impossible.

Wishing you the best and hoping the sun shines wherever you are today!

Strength, courage, and peace!

5 days ago · Talking Frankly about Living with Advanced Cancer in Cancer

So sorry to read this, @lbern I am not familiar with what you are referring to with the CA 19 test.
If you don't mind I'd be interested in learning what it is.

Also, I support your 'the good and the bad' perspective here! It was exactly the fact I could 'be myself' here that made me come to and stick around Connect. Healthcare journeys are not always positive. I for one belive sometimes just saying (or typing) something outloud makes it far easier a burden to carry!

Good luck with the MRI results. Will be thinking about you!

Strength, courage, and peace

5 days ago · Who will care for us as we age? in Caregivers

Very thought provoking question, @georgette12 I was my wife's caregiver during her 14+ year war with brain cancer. Now I am a widower and often wonder about this for me in the future!

I would never want to be a burden to our two children so I have no desire to move in with them when, or if, I need assistance in living. Most of the 'homes' here in our area are not the best and my parents, who made the decision to sell their home and buy into a graduated care community hated it and too late discovered that not all costs are covered, but the basics are, which often are not enough for what they needed at the time

I have also read several stories about how terrribly expensive nursing home insurance gets when you are actually at the age you need it the most.

Wish there was an easy answer!

What are others thinking?

5 days ago · Talking Frankly about Living with Advanced Cancer in Cancer

Good to hear @gingerw I will never forget our daughter whispering to me in the funeral home 'I am so glad we know exactly what Mom wanted. Can you imagine having to question ourselves with every decision?'

Enjoy your Friday!