About

First Name
Scott

Health Interests
Caregivers, Cancer, Chronic pain, Eye disorders, Neurology (brain and nervous system), Palliative and end-of-life care

Posts ()

2 days ago · Meet fellow Caregivers - Introduce yourself in Caregivers

Hello @debbief I am sorry to read of your husband’s health issues. A tough road for him for sure.

You’re right about our lives changing due to caregiving and a loved one’s major health condition. It was true in my wife’s case with her brain cancer diagnosis. It was never the future we had thought about, but we had no choice, especially her.

It did take time for us to understand each new reality as it unfolded on us.

4 days ago · Familial hypercholesterolemia in Heart & Blood Health

Hello all. I know this discussion has been a bit dormant, but recent events have brought me here. I have FH from back when they called it Frederickson’s Type 4 Familial Hyperlipidimia. My dad had it and most recently our son and grandson have been diagnosed with FH as well.

At 42 our son had a cardiac event and went in to be checked out. He’s a marathon runner, healthy eater, nonsmoker, and crossfit participant. His echo was fine, his ekg looked fine, BP was in the normal range. Then he failed his stress test. First cath found three major blockages. After several consults with various members of his local cardiac team he opted to try stenting, which they were able to do. His team is adamant about driving his numbers ‘into the basement’. His formal cardiac rehab program will go for 12 weeks and his regimen of statins, blood thinners, and more will continue far longer than that.

Our son had a good outcome, which has become a new call to action for me to seek out an FH specialist to insure I’m doing everything properly and to increase my knowledge base on this disease.

6 days ago · Challenges of macro caregiving: Dental care, eye care, etc. in Caregivers: Dementia

Hi @ngyose and @colleenyoung In our case it was a classic example of ‘good enough’ caregiving. My finger never got bitten, but then again not every tooth got cleaned every time. Flossing was an impossibility and luckily my wife only had one minor dental issue in her 14 years of her war.

Wed, Nov 6 10:50am · Challenges of macro caregiving: Dental care, eye care, etc. in Caregivers: Dementia

Hello @ngyose You raise some very good caregiving questions.

I can only relate what I did for my wife. For dental care I began using a small brush that fit on the tip of my finger. Made for pets, but got the job done.

With eyesight, it may sound harsh, but we just kept using her most recent pair of glasses.

Wish I had more insights.

Sun, Nov 3 4:52am · Going my way: Decided to stop cancer treatments in Breast Cancer

Hi @trese5524 I am sorry to read of your health challenges. My wife fought brain cancer for over 14 years. Her constant and consistent guiding principle was ‘quality of life over quantity’. She chose each of her treatments, etc. with this in mind.

I hope you are feeling well today and the sun is shining wherever you are.

Thu, Oct 24 9:35am · The End: When caregiving ends, my husband passed away in Caregivers

Hello @anncgrl I am sorry to read of your loss. This is never an easy time, but seems to be especially when you have been a caregiver. I have found grief to be as arduous and unique as the caregiving journey you have recently completed.

I wish I had some gems of wisdom, which would make this time easier, but all I can think of is one of the ideas I used when my caregiving time ended. I began a 'to do' list of things that I had not been able to do when caregiving. Most were short and tiny — call some old friends, reach out to someone I had lost touch with during my years of caregiving, attend a local event in town, paint all the chips in the walls from the wheelchair, and the like. As I would do one, my 'rule' was to add a new one to the bottom so I always had something to look forward to, or that I had to undertake (when they were the things that weren't so fun like repairs, deep cleaning a room, etc.)

Wishing you all the best as you move forward!

Tue, Oct 22 6:16am · Triggers for caregivers in Caregivers

I love the harp ring tone idea @vickys Thanks! What a nice idea! I basically keep my phone on vibrate all the time, but have two ring tones for our adult children. Our son lives near Disney in Florida so I have 'When you wish upon a star' for his family and our daughter lives in Chicago so I use 'My kind of town'. Now if you don't mind me copying you, I think I'll change my default ring to something soothing like you harp idea!

Tue, Oct 22 6:12am · Triggers for caregivers in Caregivers

SO true, @georgette12 It is amazing how, when you are stressed, the phone can be such an unwelcome intrusion and perceived as a negative indicator! I find I really, and I mean really, need to be in the mood to chat on the phone — and don't get me started on the number of robo-calls I get now on my cell phone! It is crazy!