About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (2)

Oct 22, 2015 · Video Q&A about Marfan Syndrome: Challenges in Diagnosing and Treating in Heart & Blood Health

My grandson had RSV 3 times as an infant and gets pneumonia regularly. My daughter-in-law said this is not marfan related. He has an inhaler now which helps and he has not ended up in the hospital with this issue since he started using it. Could his lung issues be marfan related?

Oct 22, 2015 · Video Q&A about Marfan Syndrome: Challenges in Diagnosing and Treating in Heart & Blood Health

I just learned my 3 1/2 year old grandson’s aorta is at 42 What does this mean and at what point do they do surgery?