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Posts (5)

Dec 7, 2016 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

I have been trying to figure out why and what to do to figure out if my Epilepsy is caused by Chiari Malformation and if they are related and what options I may have to figure it out. Every Dr. I have been to has been absolutely no help.

Dec 7, 2016 · Trying to figure out what would cause Epilepsy, related to Chiari? in Epilepsy & Seizures

I am trying to figure out why and what would cause Epilepsy at the age of 36. I never had this problem before. After I was diagnosed with Epilepsy I was also diagnosed with Chiari Malformation right afterwards. If my skull apparently quit growing between the age of 11-13 and your skull and brain grow until you are 25 why would I start having these health issues at 36? It makes no sense to me. Are the two related and if not WHY did I start having these seizures at 36? It makes no sense to me.

Sep 29, 2016 · Pain, Depression and anxiety in Chronic Pain

I know this is centered around however, I am epileptic, Chiari Malformation, basically my brain (cerebellum) part is falling out, 3 cadaver bones in my neck and constant pain. I have been checking some if the medications I have been on should at the very most all killed me. All because they didn’t know how to fix my problem. I’m still fighting.
Sorry to enterupt your situation. I just am getting so depressed that I always wonder why it wasn’t me instead of my mom.

Sep 29, 2015 · Chiari Malformation type 1 in Brain & Nervous System

All I keep getting told is “your brain isn’t falling out enough to worry about it”. I now have seizures I can’t work, I can’t drive and I have many other problems and I am only 46

Sep 29, 2015 · Chiari Malformation type 1 in Brain & Nervous System

I was told by a Nuero-Optimologist that when your brain swells it pinches off your putulatary gland. Which causes the headaches and double vision.
Sorry about the spelling but hopefully that explains a little