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Posts (7)

Nov 19, 2016 · Pancreas and Kidney transplant - share experiences in Transplants

Hi I have had Type 1 for 40+ years and on the wait list for 14 months. I am now at the mayo clinic Rochester ICU post transplant.
that happened on 11-18-16 at 5:30 am. working perfict

Aug 26, 2016 · waiting and scores in Transplants

Hi v1crew, I hope the best for you. I am on the Pancreas list for one year. The first time I was called after a few months, but it didn’t
make it to Mayo in time so they had to cancel and I went home. Just last week I had my yearly evaluation came home then a few days
later called back up. After being there all day ready for them to roll me into surgery. instead they told me it was not usable. It’s tough
sometimes just waiting for that call that can be any time 24/7. just keep your thoughts as positive as you can. and if you start getting
down find something to do anything to get in a happier mood.
It may not be all your looking for but I hope it helps.

Aug 12, 2016 · Pancreas and Kidney transplant - share experiences in Transplants

welcome back.

Glad to know there is some good news in all that mess. I have been through so many jobs and in and out of insurance. one thing I did find was biofeedback in witch I can control some of my body through my mind. no joke it works. now on the list for a year, still waiting. Hope more things start going better for you. keep that positive attitude, it is a big help. Your in my thoughts.

Feb 1, 2016 · Pancreas and Kidney transplant - share experiences in Transplants

Yes I am type 1 for 40 years, and the pancreas was on a commercial flight that got held up some ware.
I was waiting for it being prepped but its usable time had passed and was not there yet. so it was cancelled.

Jan 31, 2016 · Pancreas and Kidney transplant - share experiences in Transplants

Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don’t know what a year or more would be like?

Sep 12, 2015 · Diabetic for over 40 years, on the pump, waiting for transplant in Diabetes/Endocrine System

I have been diabetic for over 40 years. on the pump and CGM for a few years. Now on the Pancreas transplant list as of yesterday. So now I am hoping something good comes out of this. Not sure what to get out of this forum? on a new path of life anything can help.

Sep 12, 2015 · I recently started on the insulin pump in Diabetes/Endocrine System

Hi Julie, This is my first post. I have been on the pump and CGM for a few years. Now on the Pancreas transplant list as of yesterday after 40 years of this pain. As far as carbs, you would think it would be easy. all the books and packaging show carbs, but when you add stress or any other complex factors of life your body complicates everything about your BG. I can go for a few days of being ok, than anything I do is all messed up.
Your not alone.
Bob