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Posts (12)

Tue, Jun 18 12:01pm · What now? What else can be done? in MAC & Bronchiectasis

I was having burning in my lungs. So maybe that’s why the change. My current x-ray shows a lot of inflammation.🤷🏻‍♀️

Tue, Jun 18 11:51am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Yes. Since the beginning in 2014.
I saw the radiologist report of my chest CT last week. First time I have had “tree in bud” on an X-ray.

Mon, Jun 17 10:18pm · What now? What else can be done? in MAC & Bronchiectasis

Iowa. Professional Fundraising and Nonprofit Management, retired.

Mon, Jun 17 10:16pm · What now? What else can be done? in MAC & Bronchiectasis

Hmmm. Interesting.

Mon, Jun 17 10:15pm · What now? What else can be done? in MAC & Bronchiectasis

Yes. I continued the neb treatments. Coughing spells started increasing, night sweats returned, overall ill feeling. My PCP did sputum test. It was positive for pseudomonas. Then everything escalated. I had CT last week. “Critters” (plus a new friend) have all moved in and set up shop!

Mon, Jun 17 10:08pm · What now? What else can be done? in MAC & Bronchiectasis

I had been using 7%, but when I began lung clearance three times a day, I was instructed to use albuterol morning and night, and then midday use 3% saline.🤷🏻‍♀️

Mon, Jun 17 10:01pm · What now? What else can be done? in MAC & Bronchiectasis

I have done Levoquin three times since April. Then the last time I took an antibiotic called cefpodoxime. But it’s back along with MAC. Ugh. Thanks for info.

Mon, Jun 17 9:56pm · What now? What else can be done? in MAC & Bronchiectasis

Yes. They have done the sensitivity testing over the last couple months from my appointment in May. I will find out the treatment plan tomorrow. Thanks.