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Posts (1)

Jul 26, 2015 · Autoimmune diagnosing problem - Full body rash in Autoimmune Diseases

After many tests including emgs, mri, blood, & spinal tap, I was dx with CIDP, put on 60mg predisone per day which did not help. Then had 9 IV IG treatments. They did not help. Went to CIDP Int. Foundation seminar & after speaking to several Dr there who reco that I get another dx. Went to Shanz Med. Ct in Gainsville, Fl., Dr. after nerve cond. test said that I did not have CIDP, but had CMT & that there was no treatment. Back to local neurologist who said I did not have CMT. thought polyneuropathy & only gave me pain killers. I will be going to Mayo next week, hopefully for some help. I have chronic pain & loss of strength in my legs & hands. Walk with cane, but concerned how much longer I will be able to walk.