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Jun 7, 2015 · Video Q&A about Amyloidosis – What Patients Need to Know in Blood Cancers & Disorders

Have you tried University of Pennsylvania Hospital? They run clinical trials for some types of amyloidosis. We are also from Delaware, and my husband is on a trial at U Penn for Wild Type Cardiac Amyloidosis. If you haven’t tried anyone there, perhaps Dr. Brian Drachman, the cardiologist who runs that clinical trial, will know if they treat your type.

PCD

Jun 4, 2015 · Video Q&A about Amyloidosis – What Patients Need to Know in Blood Cancers & Disorders

This presentation was very good. However I’d like to view a presentation just on the Wild Type since those who get it and their caretakers are among the older population. For us, it is sometimes difficult to sift through what pertains to us. For instance, my husband has been diagnosed with the wild type but is affected by many, many neuropathies usually connect to the filial type. We could use some more information in this area. Thank you for the excellent presentation today.