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Posts (7)

Mar 25, 2016 · Looking for any food links regarding Vasculitis - Wegeners disease in Autoimmune Diseases

Hi
There are many but a good place to start would be http://www.vasculitisfoundation.org, probably the best site for reliable information. Then on Facebook you could join the groups- Vasculitis Awareness and Weggies Lounge just to mention a few, many people all over the world with wegeners that support each other.

If you have any specific questions, I have Microscopic PolyAngiitis which is a sister disease to Wegeners, very similar.
Kathi Snyder

Mar 21, 2016 · Peripheral neuropathy Pain caused by Vasculitis in Heart & Blood Health

What type of Vasculitis do you have? Is there any rash with it?
Kathi

Mar 18, 2016 · My Mom does not want to go for any surgery in Colorectal Cancer

Hi,
It is very hard on them at this older age, my mom will be 81 next month. She ended up with an ileostomy, and dehydrates very easily because she looses everything in liquid form so her body does not retain any for itself. She has been able to live pretty normally with help from me. Your mom should get one of those motorized scooters to get around. Her house would need some ramps if there are steps. It can be put in the car and taken places to make it easier to get out to the store or hairdresser, etc. instead of a regular walker there is a fancier type called rolls tots that also have a seat and basket. Some even called rolls toe transporters change to wheelchairs if she would get very tired and you or someone can then push her around in it. Is she able to change her bag on her own? Do you have any other specific questions imight be able to answer. My mom has had this for, I think at least 5 years now and I am her main caretaker so any questions I don’t mind trying to help.
Kathi

Mar 17, 2016 · My Mom does not want to go for any surgery in Colorectal Cancer

Hi my name is Kathi. My mom had a colostomy anthem reversal and ended up having an ileostomy after that. If you have and questions, if I can I’d be happy to help. I am her major caretaker, but she does live alone and has learned to care for it herself mostly.

Kathi Snyder

Mar 29, 2015 · Undiagnosed - sjrogrens, lupus? in Autoimmune Diseases

Have you seen a Rheumatologist?

Mar 29, 2015 · shingles in Skin Health

Be sure to ask for Neurontin 300mg 3 times a day, it will help so much with the nerve pain!

Mar 29, 2015 · Looking for expert on Constrictive Pericarditis in Infectious Diseases

?? Maybe see a Rheumatologist that is VERY familiar and has treated others with RARE autoimmne diseases/conditions.