About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (164)

Jul 14, 2017 · peripheral neuropathy in Neuropathy

Dear pstevens1955 –
Please know that you are not alone.

Mayo Clinic does have some information availble about Peripheral Neuropathy – http://www.mayoclinic.com/health/peripheral-neuropathy/DS00131

Also – if you are interested in seeing a Mayo Clinic physician in either MN, FL or AZ please click on the “request an appointment” button on the upper right hand corner of your screen.

Jul 14, 2017 · peripheral neuropathy in Neuropathy

Deear Kingrach78 –
Unfortunately –
Our Neurology department does see an extremely high demand. I do think you are doing the right steps though to follow through with your primary care physician to seek a referral. If your symptoms do not go away then being on the wait list at Mayo Clinic will be an option for you.

Mar 31, 2016 · Under the care of a Neurosurgeon in Chicago for complications with a spinal fusion in Visiting Mayo Clinic

Dear amcteague –
I’m sorry to hear that you are experiencing such pain. It sounds like you’ve taken the appropriate steps to seek care at Mayo Clinic. Our physician experts have likely reviewed your case with their colleagues both times. Their review lead them to determine that Mayo Clinic cannot offer any further treatment for you at this time. It is our goal to provide the best care each patient needs, however we do not want to have you incur additional costs for evaluation or travel if we do not feel we can offer care that is different from what you’re already receiving.
Sincerely,
Alex

Aug 14, 2015 · Webinar: Adult Brain Tumors: From Diagnosis to Recovery in Brain & Nervous System

Getting a second opinion from a major academic medical center like Mayo, can never hurt, since there was conflict regarding the pathology and the treating physician’s thoughts. If it is determined that your husband is asymptomatic for his disease, there is no need to intervene. If however, the disease were to progress or he should develop symptoms, intervention would be imperative.

Aug 14, 2015 · Webinar: Adult Brain Tumors: From Diagnosis to Recovery in Brain & Nervous System

Optune is only covered by insurance companies at this point for recurrent disease. Clinical trials are available for use upfront, but you would have had to enroll prior to initiation of your treatment with Stupp.

Aug 14, 2015 · Webinar: Adult Brain Tumors: From Diagnosis to Recovery in Brain & Nervous System

Not necessarily. The whole genetic profile must be taken into consideration.

Aug 14, 2015 · Webinar: Adult Brain Tumors: From Diagnosis to Recovery in Brain & Nervous System

It sounds as though this company in San Diego has clinical trials available for patients with high grade glioma. There are several academic centers participating in those trials. It may be worthwhile to check their website to see if a center near you is participating.

Aug 14, 2015 · Webinar: Adult Brain Tumors: From Diagnosis to Recovery in Brain & Nervous System

Dear Patti B – The can be viewed again here on this landing page and it will be uploaded to YouTube as well.