I had a successful SCT at Mayo in Feb., ’12 and I am living a fairly normal life. I was lucky to have very little organ involvement but I did suffer from nerve pain so much that I was up to 50 mg of OxyContin twice a day and another 3-4 10 mg oxycodone for break through pain. Needless to say, I was in the fetal position in pain without the narcotics. Lyrica was and is a miracle drug for me. I was able to reduce the oxy by 80%. After the SCT I was eventually able to get off the narcotics completely. After a few years I was still feeling pretty lethargic from the Lyrica and I am now only taking 75 mg 2 to 3 times per day with the help of a very low dose of 50 mg of tramadol once a day.
Good Luck and know that there are a lot of good stories coming out of the Amy / MM clinics around the country and especially from the Mayo.