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Feb 16, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Hello to all. I'm five years out from my valve sparing aortic root replacement. I was dilated to 52cm. My was partially due to I have marfan syndrome.

Nov 19, 2017 · Descending aortic aneurysm repair in Heart & Blood Health

I would consider getting repaired as soon as possible. I was at 4.5 when they repaired mine but I have Marfans syndrome. Would recommend going to Mayo Clinic Rochester. Any other questions please feel to ask

Apr 6, 2017 · MCTD (Mixed Connective Tissue Disease) in Autoimmune Diseases

I would encourage you to talk to your doctor or get appt at mayo with a genetics counselor. I have Marfans that is a connective tissue disorder that effects body’s tissue with your hyper mobility that you have of symptom of Marfans

Dec 28, 2016 · Mayo Clinic Identifies SCAD As Inherited Condition in Heart & Blood Health

I wonder how many people doctors are going to just right off as SCAD don’t look into it any further for things Marfan syndrome . I had doctor never look any further until went to mayo found my dissection and other issues were from Marfan’s

Jun 28, 2016 · Thoracic aortic aneurysm in Aortic Aneurysms

You can expect to be out of work safe to say about 90 Days, You wont be able to drive for about Eight weeks. You will have lifting restrictions for a few months The aortic valve being replaced depends if already leaking. but would say that should probably be able to replace you natural valve. You can look up what they call a valve sparing aortic root replacement it might give you some info also Some of the side effects I had after surgery was body temperature changes would have night sweats etc. for couple weeks after surgery,fluid retention. sometimes I became really emotional after surgery . Don’t let you self get so worried about it will be all good

Jun 27, 2016 · Thoracic aortic aneurysm in Aortic Aneurysms

@smithjss It natural to be scared. I was diagnosed with enlarged aneurysm I was dilated to 5.5 cm I had valve sparing aortic root replacement done in September 2012 at Mayo Clinic Rochester . There always risk with surgery but I wouldn’t be to scared about. surgery just go some were Like Mayo Clinic that well knowing for it. The worse for me was the first 24 hours after surgery the only thing that happened to me was that about two weeks out from surgery I went in to a-fib ended haven ablation for atrial fibrillation other than that it just time only other thing would say is if can wait would wait until fall when the weather is cooler so more comfortable for recovery anything want to know just ask will answer if I can

Jun 1, 2016 · Large ascending aorta in young healthy 45 year old woman in Aortic Aneurysms

@jend I wouldn’t worry about it to much it wont shorten your life I had dilated to 5.5 over years from Marfan syndrome just keep up with doctor appts only thing it might change is maybe you work out routine to less high impact exercises to aerobic where you not raising your heart rate so high . .At age 39 I had what they call a valve sparing aortic ascending root replacement almost four years ago after recovery from surgery I have been fine just have to change my work out routine a little. I am open to go more in depth with my experience