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Posts (2)

Dec 2, 2016 · fibromyalgia pain in Chronic Pain

Hi Sandy, I was just reading through the comments on pain and fibro.. Anyone that has real cronic pain knows that we don’t even get close to feeling high on pain meds. With this big push on getting everyone off pain pills “carte blanche” is not fair. I’m still getting pain pills because of my spine surgeries (one more to go). However, my doctor is dying to stop prescribing them. Then what? The same people that convinced me to take 4 pills a day instead of “as needed’ now just wants me to just stop. Even though I don’t think I can make it without any help from pain meds. Every time I try to ask how to get help to get off the pills, they just blow me off. Mostly, they say just stop. What kind of professionals say that. If it was so easy there would not be so many non-sick people trying to do anything to get their hands on them. At my age and all the complications I have, I should be allowed to have some relief. Or any age for that matter. I don’t know who to turn to..

Oct 23, 2016 · fibromyalgia pain in Chronic Pain

Hi There, I think I’ve just met my sister from another mother. My life is almost identical to yours. I live in the middle of 70 acres of land so I rarely get to see people all week.. Even on weekends I see people but I can’t really talk to them as they’re just enjoying the property. Once a month or when I’m feeling up to it, I go out and talk to someone. Plus, I’ve had two spinal surgeries and a knee replacement. Turns out I’m allergic to the titanium implants. Now that pain has been heightened by the fibro. Sometimes I feel like I’m in hell on earth. I used to be able to get around better until the back op. It was from S1 to T12.
Most days I stay laying in bed for about a half hour, take my meds go lay down watch a couple of my favorite shows.. After that, I scream at myself to stop being such a baby and picture some of the patients that I’ve seen at MGH That really helps me to drag myself out of bed and take a nice hot bath. Going to get a nice soft massage is a relief. For however much time you can afford. I’d rather go to the spa than eat. Also, my husband bought me a massager with two big round devices on the end. I feel it works for a while and gets the blood moving.—-Doctors say that better blood flow helps heal the body faster, it’s worth a shot. Try to shop on line if you can. I buy myself a lot of beautiful clothes(in the size I’d like to be). I shop at expensive stores, sometime for hours.
In the end I have to go back and delete all of the items I’ve “purchased”, but it was fun for a while. If you’re not into clothes that much, just look at things you’ve always wanted to have. One more thing, I’ve noticed that there a lot of clinical trials out there. Just my sister sent me a medical magazine and it had several talks on Fibro. Keep Praying! Carol