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Posts (6)

Aug 17, 2015 · Greetings and Introductions

We just had our 31st Annual NICU/ISCN reunion at St. Mary’s on Aug 2. This year our PFAC (Newborn Family Advisory Council) members were more involved with the planning of the reunion and I believe it was very successful.

Jul 27, 2015 · Are there any other family-based PFAC's? I'm on the Newborn Family Advisory [...]

Are there any other family-based PFAC’s? I’m on the Newborn Family Advisory Council and I feel that our PFAC is somewhat different from PFAC’s that are patient driven councils. Our children are the former patients of the NICU and ISCN, so we advocate for future patients and their families who go through the distress of having a sick baby in these units. Attached are slides I’ve recently presented to NICU/ISCN nursing committees telling about our council.

Jul 27, 2015 · ICU morning rounding run by Patients and Family members

I would be interested in your focus group. I’m on the Newborn Family Advisory Council for the NICU and ISCN.

Jul 24, 2015 · Your link for the bedside handoff survey goes to the PFAC database [...]

Your link for the bedside handoff survey goes to the PFAC database survey I believe…do you have the correct link to the bedside handoff survey?


May 28, 2013 · Help for Clayton in About Kids & Teens

It’s a shame that Clayton’s quality of care is affected by your daughter’s financial situation. Might I suggest you talk to a social worker in your county to see if he qualifies for some aid, possibly social security due to his seizures. If his current doctor isn’t helping you find a diagnosis then, if it were me, I’d look for a new doctor.

May 28, 2013 · Baby sleep disorder? in About Kids & Teens

Have you tried taking her to a sleep clinic? My son was born 3 months premature and didn’t have as much trouble sleeping as your little one, but he snored a little and was a little bit behind developmentally also. So the Mayo NICU/Development Clinic referred us to the Mayo Sleep Clinic. We did an over night test at home, basically an oximeter that measures his oxygen saturations levels. He had enough desaturations that prompted an overnight (outpatient) stay in the sleep clinic. Where they placed leads all over his head and monitored him through the night. He was diagnosed with a slight sleep apnea that eventually went away on its own by age 2. But in your case it’s worth mentioning to your pediatrician for referral. Dr. Kotegal was excellent in our case.