Posts (39)

4 days ago · Join us! PICS Support Group Meeting

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Please join us for our next PICS Peer Support Group on September 18th, 2017 from 2:00pm-3:00pm. We will be meeting at The Pantry in Kutzky Market in Rochester, MN. This will be a time to come together, share stories, and witness recovery. Please see the Support Group tab on this site for more information.

Map to Kutzky Market

 

Wed, Sep 13 11:33am · Heart transplant in Transplants

@fatherscaregiver I wonder if this discussion thread might be helpful for you: https://connect.mayoclinic.org/group/caregivers/

It will connect you with other caregivers who have experienced many of the same challenges that you have shared with us.

Wed, Aug 9 1:24am · Join The Discussion! Online support for those affected by PICS

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On Connect we would like to bring together people who have been affected by critical illness, and hopefully lighten the burden you bear. Patients and family members welcome.

Post-Intensive Care Syndrome (PICS) – Let’s Talk

 

Tue, Aug 8 9:40pm · Post-Intensive Care Syndrome (PICS) - Let's talk in Just Want to Talk

I would like to pull in some previous participants to this particular conversation. Specifically @alyric, @spottedcat83, @crhiggins, @rsinger22, @baceman – I feel like your previous conversations have similarities to what @muriel66 has shared with us. Is anyone willing to again share a similar story or a few words on what has or has not worked for them in their experience with recovery from critical illness?

Wed, Jul 19 1:48pm · Post-Intensive Care Syndrome (PICS) - Let's talk in Just Want to Talk

@2011panc There is research out there to support that memory issues could be related to hepatic encephalopathy (HE). It is common to hear that these memory issues are often interpreted as “aging” when in reality the difficulty may stem directly from previous serious or critical illnesses. You may find more directed answers from a gastroenterologist or a provider who specializes in the liver. Many times the recommendation will be to focus on prevention of recurrence of the hepatic encephalopathy through diet, medications, etc. Other times, working with an occupational or speech therapist may be suggested to focus more directly on memory issues. Do you have a provider that you see specifically for this issue?

Wed, Jun 28 1:06pm · Post-Intensive Care Syndrome (PICS) - Let's talk in Just Want to Talk

Yes! There is a group from Harborview hospital who are members of our THRIVE collaborative through the Society of Critical Care Medicine. Here is the website for THRIVE for more information (and other resources as well!): http://www.myicucare.org/Thrive/Pages/Find-In-Person-Support-Groups.aspx

Let me know if you want more info!

Sun, Jun 25 7:33am · Post-Intensive Care Syndrome (PICS) - Let's talk in Just Want to Talk

@spottedcat83 – I sent you a personal message in your account that you might find helpful!