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4 hours ago · ~ Depressed and scared, not making it financially ~ in Mental Health

Hi @amberpep, I moved your message to your previous discussion where you are connected with several members who know your story.

First some housekeeping.
1) to see all of your messages from newest to oldest, simply go to your profile and scroll down to your post. See here: https://connect.mayoclinic.org/member/39725aa00ced969899847a73bad8bf432266449e0/
2) to see the messages in a discussion from Newest to Oldest, select Newest to Oldest in the dropdown menu under the first message. See the example in the picture below. You can also read more here: https://connect.mayoclinic.org/discussion/new-customize-the-order-you-view-posts-see-new-posts-first/

About you
Abby, I'm sorry that you are feeling in a deep dark hole covered with a wet blanket. I really feel like you need to tell someone and encourage you to be honest with your psychiatrist. You mention that you are afraid to do so because he may send you to the hospital where you don't feel safe. We are here to support you Abby, but it sounds like you need trained counsellors to help you at this time. You might consider calling the NAMI Helpline. The NAMI HelpLine can be reached Monday through Friday, 10 am–6 pm, ET.
1-800-950-NAMI (6264) or info@nami.org
Learn more here: https://www.nami.org/help

If you feel in crisis at any time call the National Suicide Prevention Lifeline to speak with a trained crisis counselor 24/7. They can help. Don't hesitate to call:
1-800-273-TALK (8255)

4 hours ago · It's hard to prove epilepsy to the doctor when the EEG is normal in Epilepsy & Seizures

@mxyzptlk32, I noticed that you wished to post a URL to a web resource with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam, so I added it to your post and here.

– I have seizures, but my EEG was normal. Why? https://www.epilepsy.com/learn/diagnosis/eeg/what-if-its-normal

4 hours ago · Colon cancer metastasized to lungs: Husband severely depressed in Colorectal Cancer

Hi @lah, I added your discussion to the Caregivers group as well. I believe there are other caregivers here who are all too familiar with the emotional side of advanced cancer – for both of you.

Lah, you describe the situation as feeling like a whirlwind and that you feel totally helpless. Can you tell me a bit more about those 2 things? Has it been the treatments, tests, and in and out of the hospital that has been a whirlwind? Or has it been the results and decisions you've had to make? Or all of the above?

How does your husband feel about continuing treatment?

17 hours ago · COVID-19 Testing: How are the data calculated? in COVID-19

@tjdog, You are correct. A person may have multiple positive tests, but they should be calculated as a single positive case. The number of positive tests in a state is not equal to the number of cases, as one person may be tested more than once. It would appear that the people you are talking with are confusing the terms "test" vs. "case."
See this information:
– CDC https://www.cdc.gov/coronavirus/2019-ncov/cases-updates/testing-in-us.html

There are certainly limitations to the data being collected and it varies from state to state. Rather than an over-calculation of cases, it is more likely than there are more cases than are being reported since not everyone is symptomatic and not everyone is getting tested.

From Johns Hopkins
"Since confirmed case numbers may be dependent on how much testing a state is doing, it is also important to see how many tests have occurred in each state. If people who are infected cannot get tested, they will not be counted as a confirmed case in the state’s data."

"When states report the number of COVID-19 tests performed, this should include the number of viral tests performed and the number of patients for which these tests were performed. Currently, states may not be distinguishing overall tests administered from the number of individuals who have been tested. This is an important limitation to the data that is available to track testing in the U.S., and states should work to address it."


Ideally, each state should be calculating tests vs. cases as this graph from Johns Hopkins shows:


17 hours ago · Aperistalsis: anyone else been diagnosed with this? in Neuropathy

@lillian32, I've added your question to the Digestive Health group as well as the Neuropathy group. I'm not familiar with aperistalsis. Has it been suggested that this might be a early stage that could lead to achalasia? How might this be related to the peripheral neuropathy and/or spinal cord myelopathy?

2 days ago · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi @donfeld, you'll notice that I removed your personal email address. We advise that you use the secure private message function to share personal contact information.
@gayle1, welcome to Mayo Clinic Connect. You can learn more about how to use Connect, including how to send a private message, here: https://connect.mayoclinic.org/get-started-on-connect/

To all, with respect to the use of Kratom, I'd like to offer this note from a Mayo Clinic pharmacist:

"Kratom is a natural product but it does have significant risks and side effects. Because of these risks the FDA banned import of Kratom in August 2016 and issued a notice of intent to classify 2 chemicals in Kratom as Schedule 1 drugs (the same category as heroin). There are no FDA-approved uses for kratom, and the agency has received concerning reports about the safety of kratom. FDA is actively evaluating all available scientific information on this issue. (2019) https://www.fda.gov/news-events/public-health-focus/fda-and-kratom

Kratom can cause dependence and withdrawal symptoms including aggression, anxiety and other negative psychiatric effects, muscle aches, spasms, tremors, insomnia, fever and upset stomach. It can also cause dangerous slowed breathing and seizures. It can worsen psychiatric disease and may increase the risk of suicide. Kratom can impair liver function. Kratom interacts with other herbal medications including Jimson Weed. It interacts with sedating medications. It has the potential for many other drug interactions because of the way it is metabolized."

For more information see:
– National Institute of Health: Drug Facts, Kratom https://www.drugabuse.gov/publications/drugfacts/kratom
– Center for Disease Control https://www.webmd.com/mental-health/addiction/news/20190411/cdc-americans-are-dying-from-kratom-overdoses#1

3 days ago · MAC Medication and long term side effects in MAC & Bronchiectasis

@derbeltal, you may also wish to read this discussion:
– Tinnitus and hearing loss from azithromycin https://connect.mayoclinic.org/discussion/tinnitus-and-hearing-loss-from-azithromycin/

3 days ago · Going my way: Decided to stop cancer treatments in Breast Cancer

@merine, in these times of COVID-19, there is an extra layer of complexity to your decision. I hear your greatest fears of "not being able to manage the pain and dying alone." I'm confident that hospice care can assure you that your pain will be managed. They specialize in pain management. Be sure to ask them questions now AND tell them your wishes and fears about pain.

COVID is an unknown for all of us unfortunately. Thus I echo @susandc's question about whether you are seeking residential hospice care, where you live at a hospice facility/home or home hospice, where palliative and hospice care come to you in your home. If home hospice is an option for you, then it may be easier to be in control of who is at your side through this journey. What options are available to you?