First Name

Last Name

Posts (5958)

10 hours ago · At a loss..what is next? in Caregivers

@lah How are you doing? I think you were getting scan results last week.

10 hours ago · What topics do you want for the Neuroendocrine Support Group? in Neuroendocrine Tumors (NETs)

Great suggestions, @nigelw. I'm sure @amandafl will appreciate these.

Nigel are you able to attend the support group at the Mayo Jacksonville campus? If I recall correctly you said you were treated there, right?

10 hours ago · Looking for your experiences with Brachytherapy for Breast Cancer in Breast Cancer

Welcome to the Breast Cancer group on Connect, @2030. When will you start brachytherapy?

While @marannolson wasn't able to have brachytherapy, she did have the catheter inserted and can share that part of the experience with you. @staypositive, were you able to get brachytherapy?

11 hours ago · CAR-T Cell Therapy: Introduce yourself and connect with others in CAR-T Cell Therapy

Hi @raemark2010, It is good to get an update from you and Mark. It must be disappointing and frustrating that the lymphoma has re-appeared in a couple of places. Thankfully there are treatment options that appear to be working. Yes, writing can be therapeutic. You're a very good writer and I can see that you weigh the setbacks and blessings, and find the hope and gratitude where it lies ready for the plucking.

22 hours ago · Completed 5 years of anastrozole. Withdrawal symptoms? Side effects? in Breast Cancer

Hi @perri @rsc, welcome to the Breast Cancer group on Mayo Clinic Connect.

For everyone: There are a few discussions about anxiety and emotional health happening in the "Cancer: Managing Symptoms" group that people may be interested in : https://connect.mayoclinic.org/group/cancer-managing-symptoms/

For example see these discussions:
– Emotional health after cancer
– Anxiety due to Cancer
– Life after a cancer diagnosis
– Coping with anxiety while waiting

1 day ago · Ewing Sarcoma in fibula of 16yo girl in Cancer

@mgashaj, I can imagine that you are anxious for your cousin. I'm bringing @madstrong and @kristennursepatient into this discussion so they can share first hand experiences with you.

How did chemo go today for your cousin? Do you know what type of chemo drugs she is getting?

1 day ago · Have you ever had hiccups with or after chemotherapy? in Cancer: Managing Symptoms

@richcolleen, can you explain what you mean by "my timer"? I think it might be a typo, but I'm not what the word should be.

1 day ago · How can I get an appointment in General Internal Medicine at Mayo? in Visiting Mayo Clinic

Hi @kam20 and welcome to Mayo Clinic Connect. You'll notice that I moved your message to this existing discussion where members are talking about getting an appointment at Mayo Clinic, specifically in the General Internal Medicine department. Click View & Reply to scroll through past comments.

Now to your post. I can certainly understand your disappointment (understatement, I know). You need to find answers to what appears to be a complex set of issues that may or may not be related. The reality is that Mayo Clinic receives more requests for appointments than available openings. Other factors for requesting an appointment come into play. Appointments are prioritized on the basis of medical need. Availability depends on the nature and urgency of the problem and Mayo Clinic's ability to help (as determined by a Mayo Clinic doctor). It is possible that reviewing your case, the physicians assessed that the care and treatments you are receiving is what they would recommend and didn't want you to incur additional costs for evaluation or travel.

General Internal Medicine is often very booked. Have you considered trying to get an appointment in another department at Mayo? Do you have confidence in the specialists you've seen thus far?