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First Name
Colleen

Last Name
Young

Posts (6361)

6 hours ago · Arachnoiditis: Trying to find a specialist in Spine Health

Hi @kimspr, discussions about arachnoiditis can be found in the Spine Health group https://connect.mayoclinic.org/group/spine-health/

I moved your message to this existing discussion where you were connected with others already, like @jelizabeth, @qball2019 @carolinapearl53 @danispiderspine and more. You may also be interested in these discussions:
– Arachnoiditis https://connect.mayoclinic.org/discussion/arachnoiditis/
– Arachnoid Cyst https://connect.mayoclinic.org/discussion/arachnoid-cyst/

I'd also like to welcome new member @kacie. Kacie, what is your experience with arachnoiditis?

6 hours ago · Arachnoiditis: Trying to find a specialist in Spine Health

Here is the link to the article that @peggyella wished to share with you.

– Rare Pain Condition Still Exists in New Forms with New Hope for Relief https://consultqd.clevelandclinic.org/rare-pain-condition-still-exists-in-new-forms-with-new-hope-for-relief/

6 hours ago · Arachnoiditis: Trying to find a specialist in Spine Health

Hi @danispiderspine, The website you posted is no longer available. Did you post the correct URL?

6 hours ago · Arachnoiditis: Trying to find a specialist in Spine Health

Welcome to Connect @ledgerwp.
You may also want to connect with @user_ch3fc240e who recently wrote about a brother with Cauda Equina Syndrome https://connect.mayoclinic.org/discussion/cauda-equina-syndrome/

How does a doctor “kick out” patients? Is there a pain clinic in your area?

6 hours ago · Arachnoiditis: Trying to find a specialist in Spine Health

Welcome to Connect @marilynmeadors
Here is a link to the American Medical Association’s doctor finder https://apps.ama-assn.org/doctorfinder/home.jsp. You can enter your zip code and find a physician or specialist in your area.

Have you considered traveling to one of our Mayo locations?

6 hours ago · Arachnoiditis: Trying to find a specialist in Spine Health

Hi Busterbrown,
Welcome to Connect. I’m also tagging @jlfisher56 on this discussion.
It is difficult to find a good pain specialist who is taking on new patients. While we wait for members to join this discussion with recommendations, I thought you might appreciate this article about Arachnoiditis from NORD (National Organization of Rare Diseases), which includes information about investigational therapies.

How are you managing your pain at the moment?

6 hours ago · Arachnoiditis: Trying to find a specialist in Spine Health

Oops I forgot the link. Thanks Teresa.