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3 hours ago · Tumor has come back in brain, fighting with IV infusions of Avastin in Brain Tumor

Thinking of you for your appointment tomorrow, @bjh369. Rest well.

3 hours ago · Cervical dystonia (Spasmodic Torticollis): Looking for support in Brain & Nervous System

Hi @tdonoho and welcome to Connect. I moved your message to this existing discussion where you'll meet @oakbourne. I'd also like to bring @helenfrances @wolfbauer and @jlfisher56 into this discussion as they have all talked about cervical dystonia. You may also be interested in this discussion:

– Anyone dealing with Dystonia? https://connect.mayoclinic.org/discussion/anyone-dealing-with-dystonia/

@tdonoho, how long have you had cervical dystonia and how are you managing it?

13 hours ago · Referral to Mayo declined in Autoimmune Diseases

@sjevans14 and @fmgeorge, welcome to Connect.
While a person can self-refer to Mayo Clinic, you are quite right that it can be helpful to have a physician referral, as they can easily transfer clinical findings, reports, etc. @fmgeorge, you offer good practice strategies that are applicable whenever one transfer care to another specialist or seeks a second opinion.

Unfortunately Mayo Clinic has more requests for appointments than available openings. Appointments at Mayo Clinic are prioritized based on medical need. Availability depends on the nature and urgency of the problem and Mayo Clinic's ability to help (as determined by a Mayo Clinic doctor). The complexity of the medical condition, or for less complex conditions, the availability of care closer to home are important factors to consider.

13 hours ago · Would like to know what this can be in Skin Health

Hi @renemom, welcome to Connect, a community where patients can share experiences and find support from each other. While we can't diagnose, fellow members can share their ideas and thoughts. Have you tried Mayo Clinic Symptom Checker for possible answers? https://www.mayoclinic.org/symptom-checker/select-symptom/itt-20009075

How would you describe the markings on your skin? Are they itchy or sore? What causes them or when do they appear? Do they disappear?

2 days ago · Portal vein thrombosis (PVT) after breast cancer treatments in Breast Cancer

Hi @survivor03152016, I'd like to bring @trese5524 into this discussion. She too had to stop tamoxifen and start taking blood thinners. In her case, it was because of blood clots in the lungs.

@survivor03152016, was the portal vein thrombosis (PVT) caught early enough that blood thinners is the only treatment you'll need? How are you doing?

2 days ago · Hearing Loss: Come introduce yourself and connect with others in Hearing Loss

Hi @cosette3 @editored and others,
You can choose to receive your notifications in one daily summary (Daily Digest) or to receive separate emails each time a new message is posted.

To receive a Daily Digest only.
1. Go to your Account Settings: https://connect.mayoclinic.org/account/
2. Scroll down to Email Notifications and select Groups.
3. Select "Include message in my email digest only."
4. Scroll to the end of the page.
5. Click SAVE.

For more tips and instructions on how to use the site in the getting started on Connect guide https://connect.mayoclinic.org/get-started-on-connect/. Further tips can be found on the About Connect page https://connect.mayoclinic.org/page/about-connect/. (Filter by category "Tips and How to Use").

2 days ago · I have ovarian cancer in Gynecologic Cancers

@m1b1r9, how are you doing?

2 days ago · Bladder Cancer in Cancer

Any update on the cause of the hematuria, @spooz2 ?