Posts (3352)

13 hours ago · Radiation therapy for vulvar cancer in Cancer

Hi Vicky, I appreciate getting your updates. Did you know that we have a discussion dedicated to animals, specifically service animals and the therapeutic powers of pets. Check it out here:
– What Pets Can Do: Health & Healing https://connect.mayoclinic.org/discussion/what-pets-can-do-health-and-healing/

3 days ago · Radiation therapy for vulvar cancer in Cancer

Safe travels. I’ve got my virtual hand ready for squeezing. 🙂

5 days ago · Has anyone been diagnosed with Central Sensitization? in Brain & Nervous System

Welcome to Connect, @acummings. We look forward to getting to know you. Can you tell us a bit more about yourself? How long have you been living with central sensitization? What helps you?

5 days ago · Meningioma & ovarian cysts and infertility in Brain Tumor

Hi @cnesselroad, welcome to Connect. I added more details to your discussion subject line to attract more members to your very specific questions about meningioma and links to estrogen and progesterone receptors.

I’d like to invite fellow members @Jackiewizardof @lindajean @55soon @fiddlemama @jkenser @pegorr @barbarabx @ees1 and others to join you here and offer their experiences. As we wait for others to weigh in, you might be interested in reading these discussions:

– Multiple meningioma brain tumors https://connect.mayoclinic.org/discussion/brain-tumors/
– Multiple Meningiomas https://connect.mayoclinic.org/discussion/multiple-meningiomas/
– Meningioma – I’m scared to watch and wait https://connect.mayoclinic.org/discussion/have-had-a-mri-that-revealed-a-large-structure-that-is-presumed/

Cnesselroad, are you seeing a gynecologist about regarding the ovarian cysts and fibroids? We look forward to getting to know you.

5 days ago · Pulmonary Fibrosis ( SOME TIMES ) in Lung Health

Thanks for starting this discussion, Harry (Francko). I’d like to ask @alancady @rayhastings @tula @kturchin @1jonwilcox and @oliver22 to also join you here along with Penlee to talk frankly about the realities of living with pulmonary fibrosis. The things we might not be able to share with family and friends, and also about how this disease affects those around us.

5 days ago · Peripheral Neuropathy - Stretching and Exercise in Neuropathy

For anyone interested ACT stands for Acceptance and Commitment Therapy.
Here is how it is defined on https://www.getselfhelp.co.uk/act.htm
“ACT differs from CBT in that instead of challenging distressing thoughts by looking for evidence and coming up with a more rational response (CBT), in ACT, the thought is accepted as a thought, e.g. “I’m having the thought that this boat is going to sink”, and then defused using a variety of techniques, which may include mindfulness, metaphors and language. ACT uses three broad categories of techniques: mindfulness, including being present in the moment and defusion techniques; acceptance; and commitment to values-based living.”

5 days ago · Autoimmune hepatitis* in Autoimmune Diseases

Hi Gabrella,
As @johnbishop suggested, I moved your message to this existing discussion about autoimmune hepatitisis so that you can connect with other members. You are wise to ask about side effects or interactions when taking more than 1 drug. Pharmacists are very knowledgeable about drug interactions. Have you talked to your pharmacist?

6 days ago · Been to an Epilepsy Monitoring Unit? What’s it like? in Epilepsy & Seizures

Several of you asked: “Why can’t monitoring seizure activity be done outside the hospital setting while the patient goes about their normal routine, similar to that of a holter monitor for the heart.”

A Mayo Clinic nurse from the Epilepsy Monitoring Unit offers this explanation:

“This is an excellent question! We try to mimic the patient’s triggers as much as possible during their stay in our epilepsy monitoring unit. Examples of this include exercise, encouraging the patient to use forms of stress when possible (such as work or crosswords), and photic stimulation (a form of visual stimulation used in conjunction with electroencephalography to investigate anomalous brain activity triggered by specific visual stimuli, such as flashing lights or patterns).

There are many factors at play during this hospitalization with the most important being safety. While in the epilepsy monitoring unit, we are able to promote a safe environment to adjust seizure medications as needed. There are physicians, nurses, epilepsy monitoring technicians, and other staff that may be required to provide care before, during, and after a seizure.

Before the seizure, each patient’s history is reviewed and discussed with the team, patient, and patient’s family to determine a course of action towards capturing a seizure. Safety equipment is used during this time due to the increased possibility of having a seizure to prevent injury. During an event, technicians and nurses are able to quickly use safety interventions and monitoring, such as oxygen and suction, to ensure the patient is safe. Medications and staff resources are available while in the hospital, if more medical attention is needed to help a patient recover from a seizure. After an event, the focus remains on safety and attending to the patient’s needs.

Other logistical issues with being in the patient’s own environment include that the EEG leads are not wireless and need maintenance from our technicians throughout each day.”

What other ways could our staff better simulate your own home environment?