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Posts (5)

Apr 28, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

There is a good Facebook group with over 250 members. Look under Sclerosing Mesenteritis. Lots of info there.

Jan 28, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi Angela here again.
Since my last conversation was barely posted I have gone down with another flare up and it is a really bad one. So my theory about not eating meat is not totally valid any more but maybe it helped in delaying the flare up. Well i will stick with the theory and hope it does help in reducing the times I have to put up with this awful condition.

Jan 5, 2016 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi. My name is Angela and I live in Australia. It has been 2-3 yrs since I last posted. I was diagnosed with M.P nearly 7 yrs ago and have had flare ups every 6 months. Some have been severe and I have had to be hospitalised for pain management but usually if I get on to Prednisolone early enough and take Oxycodone and Tramadol, I can manage it. I have a good doctor who has read up as much as possible on the illness but trusts me to know when I am having an attack which is usually confirmed by CT. It has now been 12 months since my last bout which was very severe and lasted longer than usual. In the early years I noticed that during an attack, eating meat brought about more pain so over the years I have developed an aversion to most meats and usually live on chicken and fish. I am beginning to think that this change in my diet is the result for me not getting an attack in line with the usual six monthly cycle that I have experienced in the past. Have any other sufferers changed their diet in this way and noticed any benefits.

Jun 5, 2014 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

You need to see a gastroenterologist and early medication with high dose of Prednisolone 40g. I take 40g or until pain goes then reduce dose by 5g every 5 days. If pain comes back need to go back and start again. I am in West Australia Perth and my specialist is Dr Sharon Masel at Mt Lawley St Annes Hospital. Hope this info helps.

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Jun 5, 2014 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi Bill. I live in Australia and was diagnosed 5 yrs ago. I have severe attacks every 6 months. Treated with 40g Prednisolone reducing by 5g every 5 days. Also high doses of Oxycodone for pain. I am learning to live with this but there is not much info out there about future problems if any. No ongoing diseases but history of stomach surgery which seems to have some relevance from what I have researched. Hope this helps.