Sorry for typo. I meant Mayo Clinic.
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Good for you. If you come to Nail Clinic in Rochester Minnesota. I'd highly recommend visiting the Limb Lab for your lift and shoe solutions. It's amazing what they come up with, customized, and they've helped my husband walk.
Wed, Jan 8 11:01am · I have Dupuytren's Contracture Disease . How can I cope with this? in Bones, Joints & Muscles
Having worked there, I would highly recommend sending a written message to your hand surgeon, explaining what your experience is with that injection, and asking for another.. It might be that after people are helped, they just don't go back to the doctor, so they might not realize the "full" extent of success (not to discredit their long-term studies), but what works for someone doesn't mean it works for everyone.
Having it work before, should be case enough that if you ask for the injection again with your experience would be medical justification, they should do it again. What I have discovered is we have to take control of our health, so if something works, keep doing that before you go the surgical route.
Also, sometimes if people wait too long with a situation, it gets past the point that an injection might help. He should be examined and request what you'd like before waiting until the point that surgical intervention is the only option.
I.E. My husband was procrastinating on shoulder surgery, thinking the older he became the longer it would last. Pain and meeting our annual maximum on insurance finally got him to the shoulder surgeon's office. Tests showed he had large fluid-filled cysts INSIDE the bone, and since bone is porous, it filled the area and eventually REPLACED the bone in those spots, plus some arthritis. The surgeon said he was fortunate to come in and go ahead with his surgery now because had he waited, once the bone gets to 50%, they CANNOT even do the surgery! They need 50% of the bone there to adhere a new shoulder joint to. I guess what I am saying is please do not wait to see a doctor…go in once you see symptoms happening since there is usually something they can do (if not switch doctors for a different opinion), and also TELL THEM what you feel it is (bring printout if necessary) and since the injection worked before, why not try that first before waiting until it's too late, and surgery is the only (painful, long-term, expensive) option.
I had a nasty "severe" herniation of the L4/5 discs one year ago in October. Dr. had me see surgeon who said I "completely blew it out." What I still did not understand was their terminology and how bad it was. In retrospect would have done the surgery. My family Dr. said to give it some time as I was scared by the surgeon's comments about the angle/complication a surgery would be for me so I suffered 9 months. I also "broke out some cartilage that looked like shredded chicken lying in the vertebral space" between those lower back joints. Needless-to-say, I was in horrible pain from Oct until April and it was difficult to work at a computer all day…sitting was rough, tried a standing desk, but couldn't stand long either, concentration on all the meds was hard. At first they did an injection into the joint, didn't work. Had a set-back in January where it a few Prednisone helped w/the inflammation. They did a 2nd injection right into the spine this time in the disc area, was awful for 2 wks, then a little reprieve for 2 weeks, then it ended. The end of the year is busy @ my job, so I was working long days, came home and dropped…was miserable. By February/March, I asked for something, even small, to be removed from the desk but was denied.
Any way, I did some "physical therapy" if you can call lying on your stomach and pushing up to elbows, then hands and hip stretches therapy. I was disappointed with Baldwin PT. I spent a few trips lying on the back seat of our van on ice. You name it, I tried it. Massage therapy was a godsend! To get the muscles around the discs to relax really helped, but it takes time as the area is easily irritated. You can't snap muscles back into place, especially if it's been awhile. I did daily icing of my back and Epson salt baths before work, then ice during the day and evenings (only 20 minutes or it can backfire). Heat felt good but only made the swelling worse, so don't use heat unless you are over the main inflammation stage.
Once the inflammation was down, I still iced daily but started a gentle chiropractic treatment getting my upper back and neck to the mid-back lined up again. I was nervous, but my chiropractor was gentle and stretched the muscles. What helped was a doctor telling me to GET OFF from sitting, and to walk, but also let it heal by laying flat on my back with my knees straight up at a 90 degree angle, then bent over 3 pillows so a whole week. He said it would bring blood flow to the area and give the vertebrae a break, stretching out that area, and it did work. Doesn't fix the vertebrae problem, but allowed me a break to heal, which wasn't happening due to my job, then I'd go home exhausted hurting and sit on ice at night. Sleeping on my back with a pillow under the knee was key also so my spine wasn't angled putting more pressure on those vertebrae.
One chiro said maybe enzymes to help your body absorb the herniated part of the disc. I tried a few different kinds, but I did by a Co-enzyme called CO q10 with a HIGH dose of turmeric (is a natural anti-inflammatory) with Cucurmin and black pepper extract (supposed to make the cucurmin absorb 2000 times more). My husband thought I was crazy, and the doctor just smiled at me saying with how bad mine was, it wasn't just touching the nerve, it was out and down alongside the nerve the entire space! Well, it eventually worked… In July, it had reabsorbed to the surprise of my spine doctor and family doctor.
I had also tried acupuncture, walking as much as I was able, moving around at work/standing desk, a tilt table, massage, physical therapy stretches, and sitting in a hot tub running the jets up and down my muscles on the weekends at an athletic place. I was finally feeling better early August, but unfortunately because my "core" trunk muscles are weak, I turned funny and landed in the ER with a compressed the L3/4 above the original (like squashing it down but not too bad) and herniated the L5/S1 disc (when it protrudes way past the vertebrae and usually touches the nerve or goes beyond the disc and down alongside the vertebrae at an angle like mine). This time because I have the 3 vertebrae that are no longer separated like they should be, but the facet joints (bones) along side those vertebrae did not compress, those facets are touching. A 3rd set of 4 shots into the facet joints were miraculous and worked! Takes the edge off. The problem with cortisone is, while you can feel better and it numbs up the pain, those bones are still rubbing, so you can end up worse…they are not a final solution.
What I was told is I need to do physical therapy, starting slowly, but need to do it consistently to first strengthen my muscles deep inside my stomach and back, then I can start to strengthen the rest of my core, otherwise it will continue to happen. I am watching my posture, sleeping and sitting better as well. Hope this helps.
Bottom line once the inf
Would Physical therapy where the therapists actually DO the exercises with you help? Like Active PT in Rochester, by the Rochester Athletic Club.
Totally with you on Botox! Botulism…
If you do surgery again, see if they can do a bone graft. My husband just had a total shoulder because he was bone on bone, and also where the bones are in the shoulder, the bone was narrow on the curve, and unfortunately he has some really large "cysts" that filled up with synovial fluid, but REPLACED the bone, so had he fallen, he could have crushed it. The surgeon said he was fortunate to do the surgery now, had he waited, and the bone area got less than 50%, they would never be able to do the surgery. When they did the surgery and scraped out the bones, those cysts break open and fluid comes out. So when they cut off that round shoulder joint bone, they used his own bone material, packed in into the "holes" created by the cysts, and they said his own bone will now fill the empty bone areas, and fuse/grow! Maybe something like that would help you. He did his at Mayo Clinic in Rochester.
I would see if the Lim Lab in Rochester can help you out. They have all sorts of creative solutions for medical issues related to mobility. My husband has struggled to walk after 4 foot and ankle reconstruction/fusing surgeries. He literally was walking on the SIDE of his foot at one point. They have helped him immensely. He had his doctor write a prescription for CUSTOM orthotics, both feet.
Besides the "routine" orthotics, I know there is something pending that might help a lot of people who have foot sores that won't heal, unusual custom braces, etc.
Gosh, I'm no doctor, but I'd seriously consider chiropractic care with someone reputable and who has long-term experience. When my neck was off it took a long time to get the muscles to relax and they're easily agitated, but just getting it aligned properly was an absolute relief. I also had muscle therapy since one side gets tight and the other shortened, but seems like alignment could at least give you more movement and massage along w/that would help the muscular complications. Even if it's a friend doing massage. I don't know what I'd do if I hadn't done those things. At the time, ortho really didn't suggest it, but it changed my whole life. I wish you the best.