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Posts (29)

Jul 22, 2018 · Slow degradation of my vision. Seeing a retina specialist in Eye Conditions

A doctor friend of mine says that if you want good medical care, you have to fight for it. I have spent more than six months searching for a solution to my eye problems–finally found an ophthalmologist who acknowledged that I had a problem and made an appointment for me with a neuro opthalmologist. Now I must wait till Oct. but I feel he will be the one to solve the problem. Don't wait–your eyesight is so important. Find the right medical care.

Jul 14, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

Where are MGH and Oaklander located. Two incidents of cancer plus chemo and radiation probably caused my PN.

Apr 2, 2018 · Chronic dizziness and vestibular migraines in Ear, Nose & Throat (ENT)

Kim: am so sorry to hear of your problems. I also have been dealing with constant dizziness, but the only solution I have been given is to participate in PT to realign my ears and my eyes. I have a schwannoma, but the neurosurgeon says this is not the cause of the dizziness. I also feel normal only when I am sitting or lying down. I have lost night vision completely, so cannot go out after dark. Know that many people are thinking of you.

Jan 21, 2018 · Acoustic neuroma, hydrocephalis, and vertigo in Brain Tumor

Your response did make me laugh. Getting old is not for sissies! Thanks for your research on Meniere’s. My next stop will be to see a urologist who perhaps can untangle this puzzle.
The vertigo seems a bit less severe, but I’m not ready yet for a hike. And as for the federal government, perhaps we should lock them all up together until they can behave like adults and consider the welfare of their constituents and this country.

Jan 21, 2018 · Acoustic neuroma, hydrocephalis, and vertigo in Brain Tumor

Thanks for responding. I’m told the neurosurgeon who did the shunt surgery is tops in his field. My next visit will be to a urologist to get some ideas on the UTI and the connection to vertigo.

Jan 20, 2018 · Acoustic neuroma, hydrocephalis, and vertigo in Brain Tumor

Still dizzy, but I am able to walk around the yard with the dog. I don’t take any medications except vitamins and Advil; drink lots of water, am not anxious, do not have high blood pressure. Perhaps its age–I am 82 but have always been active. My father had Meniere’s Disease and had lost his hearing, but I don’t think that condition is inherited. Any suggestions?

Jan 20, 2018 · Acoustic neuroma, hydrocephalis, and vertigo in Brain Tumor

Have been suffering from vertigo for a week. Primary care did not want to see me; said I should call the neurosurgeon who had inserted the device into my brain to take care of hydrocephalis. Had a visit with the PA for the neurosurgeon, who said there was no sign of contamination or need for a revision–also said the acoustic neuroma had shrunk. However, she attributed my vertigo to a UTI. When I contacted my primary care she reluctantly gave me macrobid for the UTI. Has anyone heard of a UTI causing vertigo?

Jan 12, 2018 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Three years ago I flew to visit a granddaughter. Collapsed on arrival, and after 3 days in the hospital and many tests, I was told to get an MRI. Since I felt OK, I delayed the MRI until I had difficulty with balance, memory, etc. The MRI showed that I had hydrocephalus and an acoustic neuroma on the right side. Don’t know whether one caused the other, but the neurosurgeon inserted a shunt into my brain. Had an MRI in Dec. and the doctor says the neuroma is not growing but the pressure on the auditory nerve is causing more loss of hearing in my right ear. He does not recommend surgery.
Recently have had problems with dizziness. Otherwise, the shunt seems to be working. I continue to drive, do yard work, travel, and enjoy the grandchildren. For some reason, the neurosurgeon does not recommend the cyberknife. Has anyone had a negative experience with this procedure?