About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (9)

Jun 24, 2018 · Transplant list in Kidney & Bladder

Please do tag her. I actually work with the veterans in the hospital, but regularly meet and talk with transplant patients as well. I enjoy sharing stories.

Jun 24, 2018 · Transplant list in Kidney & Bladder

Hi. I am a liver/kidney recipient Oct 1012 and I volunteer at Mayo Jax on Mondays. If you would like, maybe we could meet and discuss the process. If interested, just let me know via this link, and we can exchange contact information. Good luck to you.

Jul 14, 2016 · Anyone have breathlessness with changes in antirejection meds? in Transplants

I have never had that problem,. Liver and Kidney TX 3.7 years ago. My antirejection meds have not changed, just reduced in dosage. Now on 1 mg prograf 2 x a day, and 250 Cellcept twice a day and 5 mg prednisone once a day.

Apr 4, 2016 · Planning for a Mayo kidney transplant. How long is the wait time? in Transplants

I received a kidney and liver transplant at Mayo Jacksonville. I lived rather close to the hospital already, but after transplant decided to stay on campus at one of the motels to ease a one hour commute. There are plenty of options available in Jax, and would assume the same is true for the other two campuses as well. Check with social worker — they have a wealth of suggestions.

Mar 14, 2016 · How long does it take a kidney transplant recipiant to recooperate? in Transplants

Y had both a liver and kidney transplant in Oct. 2012. I am doing very
well. How about you?

Sep 29, 2013 · Liver Transplant for Primary biliary cirrhosis (PBC) in Transplants

2I received a liver and kidney October 7, 2012 and am doing fine. Had some complications that required second surgery to fix, but otherwise have been doing wonderful. Would love to chat and find out how you are doing or need. Walr

Sep 21, 2013 · Hi. I got a new liver and kidney at same time in in Transplants

MELD at time of transplant 20. No PBC

Sep 10, 2013 · Hello. I had my pre transplant testing last year, July through September in Transplants

Hello. I had my pre transplant testing last year, July through September 2012. I got listed finally the end of September, and was called for a liver and kidney transplant only a few days later. It can happen very quickly if you get listed, so be prepared. It all depends on the match, and it may take some time. But I was lucky. I had the surgery and then had a second surgery to repair a leak (this is not common and infrequent). My suggestion would be to stay positive, and after discharge from the surgery, stay very close to the Clinic. We stayed on campus at the Courtyard — they give a 50% discount for transplants. That first week after discharge you will be at the Clinic every day, dawn to dusk. And you need a place to rest between appointments. But healing went well, and I am doing better than I expected. Feel wonderful — better than I have felt in past 20-25 years. Just keep a positive attitude, walk as much as you can stand it, and your recovery will be great. @bink