I, too, have gastroparesis. Also esophageal problems (which lead to immediate regurgitation on top of the delayed vomiting from the gastroparesis). I don’t have a lot to offer other than sympathy. So far. I was told by a GI specialist that the pacemakers haven’t lived up to their early promise and that when they do help, it’s usually for people with diabetic GP, which I don’t have.
I want to make sure that you’ve been tried on Donnatal. I didn’t tolerate Reglan, but this has been helpful for me. I don’t use the time-release version because it’s too sedating and doesn’t leave me a rescue remedy when I stay full despite having it on board. (I take 1/2 tablet w/ each “meal” and at bedtime, adding another 1/2 if I still feel too full more than an hour after having eaten.) It’s an off-label use (I think), but my primary supported my trying it — I had some at home from prior stomach trouble.
I also use Zofran for nausea. We tried it as a prophylactic, but I vomited anyway, so I went back to PRN.
All that said, I’ve been regurgitating and vomiting frequently for the past two months even with the Donnatal and Zofran, which used to keep me from doing so. I am receiving i.v. fluids on a regular basis to treat dehydration, so I don’t have the super dryness. I am expecting to get a PICC line soon to facilitate the i.v.s – my veins are getting cranky. Are you getting fluids? If you get a PICC line or a port, you can start TPN, right? And at least get enough nutrition and fluids to stay healthy until something else is figured out.
My best things to eat and keep down these days are: toast, banana, jello, and homemade bread pudding with some (nondairy, nonsoy) milk poured over it. For some reason, I also seem to be able to tolerate cream of asparagus soup made by first cooking some cut up fresh asparagus in water and then adding the condensed soup and enough “milk” to make it the right consistency. And a few plain, low fat crackers (like Trader Joe’s Pita Bites) or a few pretzel thins. Sometimes I can also get/keep down a small amount of goat cheese for protein. Cow milk and I are not on speaking terms, and commercial protein formulations don’t sit well with me, either. Thin/clear liquids often come right back up, bringing food along with them. I don’t know if any of this is useful to you, but hope there’s a morsel here, somewhere.
Best of luck to you.