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Tue, Nov 26 2:12pm · extreme outer ear pain in Ear, Nose & Throat (ENT)

Kevin1234: MY PAIN IS GONE!!!! so Kevin. let me tell you my experience. have had terrible pain both ears for 20+ yrs when I sleep on them, especially the right ear. dr sent me for xrays, to Ent, to another Ent. no one had answer all looked at me funny as if I was nuts. also have acid reflux and very bad allergies for which I take generic Zyrtec. in meantime allergist retired and new one said we have a pocket of cartilage behind each ear which probably had become inflamed for all those yrs. that's why when I would massage behind ear gently at first then aggressively I would hear crackling. new doc said that was the cartilage breaking up. about 2 yrs ago I told my old allergist about getting very sick after plane ride. he suggested doubling up my allergy pills. BTW this allergist also had no answer about ears. because the next allergy season was so bad I kept taking double dozes of pills. I first noticed (about august of 2019) that my left ear was no longer painful to lay on. still did not make connection. then about 2 months later (late september 2019) the right ear was no longer painful. UNBELIEVABLE…..after 20+ years!!! but, during October, I had a very bad allergy day and my right ear (which had been the bad, bad one) started to hurt when I laid on it. so I decided to experiment. stopped taking allergy pills (in past only took allergy pills in summer). it took approx. 3 weeks (just a week ago) that my pain came back not as bad as before but bad enough to notice and only in right side. I got so scared it was coming back that I got up from bed and immediately took allergy pills. next day it was gone again. so….what does that tell you? I think everyone has this pain for different reason, but perhaps someone might have for same reason as mine and could benefit from my experience. BTW, your reference to acid reflux is very interesting and could very well be an answer for others.

Mon, Feb 11 6:28pm · extreme outer ear pain in Ear, Nose & Throat (ENT)

good luck celeste. let me know if it works.

Sat, Feb 2 3:27am · extreme outer ear pain in Ear, Nose & Throat (ENT)

Thanks celeste. Will do. Appreciate ur time researching.

Thu, Jan 31 12:53pm · extreme outer ear pain in Ear, Nose & Throat (ENT)

Reasearched info on auricular CHONDRITIS. That is NOT my condition. If you Look at pics of ppl w that condition u will notice they're talking about all the cartilage in outer area of ear and will c total redness of ear. That condition sounds serious w danger of losing cartilage. It is not something u can have for 20 some yrs without serious consequences. My pain is behind ear where ear connects w skull. But perhaps thats what u have. I doubt it though. Didn't u say you had it forever? PA's have habit of giving ppl diagnoses when it shd b dr that does it. U SHD discuss w ur dr. Pillow is great idea. I'll research. Thanx

Wed, Jan 30 8:44pm · extreme outer ear pain in Ear, Nose & Throat (ENT)

On Tuesday, January 29, 2019, Mayo Clinic Connect wrote:

Have not gotten any answers. However since i wrote the initial info re the pain my left ear has miraculously "healed" itself. Pain is gone. Right ear however has gotten worse. Now right ear pain starts when i lay down and touch it. Even without laying on it. So I'm very careful not to lay on it. Here's some insight. Was at new ENT doc's office for unrelated issue. He had drawing of outer ear on wall. Back side of ear. Right where i have pain it showed some elongated different areas. Asked him what it is. Told him about my pain and how it crackles when i rub there while i have pain. He said it is cartilage. And sometimes that can get inflamed. And crackling is cartilage breaking up. First dr to say this. And I've had number of tests. No answer on cause however. Or any treatment. We'll prob have it til we die. Celeste i have tested various things to do for pain relief. I used to get up out of bed when i accidentally slept on an ear and wake up with excruciating pain. I'd stay up about 5 min and it would b gone. Funny being upright took pain away. Now i stay in bed and start rubbing area. Gently at first because it is so painful. Then start rubbing more forcefully, i hear the crackling, and the pain goes away very quickly. U might want to try. ENT dr said very high thread pillowcases will keep pain away. I'm doubtful. Have not purchased yet but will in near future. I'll try anything.
I have had this for at least 25 yrs. I'm 75 myself. See no total relief in sight. Then again my left ear is fine now. Go figure. Sorry i couldn't give u better news. Try the rubbing. It really works.
Mayo Clinic Connect
@celesteh77 mentioned you in extreme outer ear pain on Tue, Jan 29

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@ellienewfan I read your post from Feb 4, 2013. I am 81 years of age and have had the same pain as you for 20 years. All your symptoms are exactly the same as mine. In the past 6 years, since your post, have you gotten anyone to tell you what to do for the pain. Has it ever improved. Thank you for responding…
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Apr 2, 2017 · extreme outer ear pain in Ear, Nose & Throat (ENT)

thx for info on vitamin d and calcium.  i will definitely try and give everyone updateliz

Oct 11, 2016 · extreme outer ear pain in Ear, Nose & Throat (ENT)

thanks, @upartist. i am definitely going to try the elevation. although i do elevate my upper body due to acid reflux problems, i can see that i probably should try raising the bed.. also read your thoughts about kinesio-taping. not sure i understand it, but will keep in mind. and research. perhaps discuss with my doctor. if i should get any relief by raising the bed itself, i will let everyone know.