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Dec 8, 2012 · narcolepsy in Sleep Health

I’m not sure about having heavy pressure on your chest when you wake up as being a symptom of apnea. On the few nights that I can’t use my cpap, I have a sore throat and soft palate the next morning. I also have GERD. You can go to the website CPAP.com and read posts by people with apnea, and you can ask questions there too! Somebody there may have symptoms like yours, and it is a great site for info! Good luck to you, and please let me know if you find the info you need!

Nov 21, 2012 · narcolepsy in Sleep Health

I was (mistakenly) diagnosed 20 years ago with narcolepsy, and spent 15 years taking very high doses of amphetamines & methamphetamines.

Four years ago, a little girl who had spent the night with my daughter told her that I was going to die. She said that her dad sounded like I did when I slept, and he had to sleep with a machine so he wouldn’t die. When my daughter told me this, I immediately knew she was describing sleep apnea & I called the sleep doc for another test.

Bingo, I have obstructive sleep apnea and now have a cpap. Try going cold turkey off of amphetamines, NOT a picnic!!!

My husband had been diagnosed with obstructive sleep apnea several years before, and was told to stop smoking, lose 30 lbs, and get a cpap. He said the doc was nuts and didn’t even try to do anything the doc had recommended.

In 2006, he had a massive heart attack, he had less than 2% odds of surviving, was put in a coma for 7 weeks, had an LVAD implanted, and had to wait 7 months to get on the heart transplant list, because they will NOT put anyone on that list who smokes or drinks alcohol. I spent most of that year living at The Cleveland Clinic.

His diagnosis? Severe heart failure, which could have been avoided by simply sleeping with a machine & following the doc’s orders.

I just want people to understand that sleep apnea is NOT just loud snoring and a suggestion to remedy certain behaviors is NOT just idle talk!

You can & will die from sleep apnea if you don’t treat it!

I am currently sleeping with my much hated cpap machine, and am looking into the Pillar Method. My husband? He got a new heart, lived 4 1/2 years, then died from lung cancer.

Nov 21, 2012 · Dental device for sleep apnea in Sleep Health

I have the same problem, I HATE my cpap! personally, I don’t qualify for a dental device because I wear a denture, so am looking into the Pillar Method. you may want to consider having the Pillar procedure done.
Good Luck!

Nov 21, 2012 · Ventricular Assist Device advice? in About Kids & Teens

An LVAD or RVAD is not the easiest thing to live with, but it can give you the option of a eventual transplant, and when you are relying on one of these VADs, you get sent to the top of this transplant list for a limited time. My husband had an LVAD for 7 months, got on the transplant list, and got his new heart just 4 days later. I totally agree with TommyM, check out the website he listed with an open mind, and remember, some of the stepping stones we face in life may not be pretty or comfortable, but they are necessary to get us to the next level in our life!
I wish you much joy & success, dear one!

Nov 21, 2012 · mitral valve, in Heart & Blood Health

I have had MVP since the late ’70’s. NO, coughing is NOT normally associated with this condition. The underlying cause of your cough could possibly be a mild form of exercise induced asthma or something similar. report this symptom to your doc, as it is not a usual symptom.